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What is EDS?
Ehlers-Danlos syndrome (EDS) is a genetic disorder in which the structure of connective tissue is abnormal due to a gene mutation. This results in abnormally fragile and hyper-extensible tissues throughout the body which can lead to a range of multi-systemic symptoms; the effect on the body is widespread and not limited to one body system.
There are different types of the condition and a vast spectrum of symptoms are experienced by our community. Although many lead full and active lives, EDS can lead to physical disability and some rarer types can be life limiting. There is a lack of knowledge about EDS in the medical profession and it is therefore often misdiagnosed or overlooked. Find out what EDS UK does to help here.
- About 5 hours ago RT @cheryleehouston: Pain? Dislocations? For helpful info connected to Izzy’s pain storyline in @itvcorrie see https://t.co/G2SyJfchF4
- About 5 hours ago RT @rarediseaseday: Now in 30 languages! The #RareDiseaseDay 2016 video is spreading around the world and raising awareness! https://t.co/t…