Living with a disease which is virtually unknown to the masses is a challenge beyond description. In so many ways we feel helpless, which leads to the belief that we are controlled by that, over which we have no power.

KNOWLEDGE IS POWER

We must learn all we can about Ehlers-Danlos Syndrome for in that knowledge we can have power over our own lives. We have to accept that, in all fairness, we cannot expect every doctor, specialist or health worker to know all there is about EDS, it is an uncommon disorder which they will rarely meet. Therefore if we know as much as possible about EDS we can work together with our health professionals to obtain the very best care and treatment.

The Ehlers-Danlos Support Group aims are education, information and research. It supports those with EDS and medical and caring professionals. It publishes a range of booklets and information sheets on aspects of EDS and related subjects. It also links members with each other for mutual support and the exchange of ideas.

The Ehlers-Danlos Support Group has funded this website and messageboard to provide information and support to people with EDS. If you have found this useful, please consider joining the Support Group so that those of us with EDS have a stronger voice.

By becoming a member you will

• Have the opportunity to meet others with EDS
• Gain information about EDS
• Be informed of medical advances
• Be given the opportunity to help in any research projects that may take place
• Enable the Support Group to increase awareness amongst medical professionals
• Receive the twice yearly newsletter - Fragile Links
• Have priority booking at the Conferences and Regional Days
• Be granted access to the section of the Messageboard for members

BECOME A MEMBER NOW

Please choose the relevant form for your location and send to the office

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