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Join the Dazzle Walk

This May, join us as we aim to raise £5,000 through the inaugural EDS UK Dazzle Walk


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New webinars for members

We are delighted to announce a series of webinars for members in February and March


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Become a home hero!!

Be a hero and virtual fundraise for The Ehlers-Danlos Support UK.


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We can help

EDS UK is the only UK charity to offer support to people touched by all types of Ehlers-Danlos syndrome


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Nobody should be left to fight on their own. Every person with EDS should have access to the appropriate medical services and care.

That is why we are here, that is what drives us to work everyday. To offer support to anybody touched by Ehlers-Danlos syndrome.

What are the Ehlers-Danlos syndromes?

Management and medical information for people with EDS

Get Involved

Your fundraising, donations, subscription and volunteering could be life-changing

Support Groups

Find your nearest Support Group and reach out to others who understand

What you can do

Join Us

Become a free member of EDS UK and be kept up to date with the charity and EDS

Join Us

Become a free member of EDS UK and be kept up to date with the charity and EDS

Subscribe

Subscribe to Fragile Links, the UK's only magazine dedicated to EDS, contianing management advice, charity news and member stories

Subscribe

Subscribe to Fragile Links, the UK's only magazine dedicated to EDS, contianing management advice, charity news and member stories

Featured news and stories

April 15, 2021

New children’s picture book raising funds for EDS UK

Emily Joshua has written a new children's picture book call "Big Dog, Little Dog or Someone In_between. The book features a character with hEDS and is also raising funds for The Ehlers-Danlos Support UK.

April 10, 2021

EDS UK Bake-In: Easter showstopper challenge winners

We are delighted to announce the EDSUK Bake-In Easter Showstopper challenge winners.

March 26, 2021

EDS UK Bake-In: Pastry challenge winners

We are delighted to announce the EDSUK Bake-In pastry challenge winners. We move onto the Easter showstopper next week

March 13, 2021

EDS UK Bake-In: Bread challenge winners

We are delighted to announce the EDSUK Bake-In bread challenge winners. We move onto pastry next week

February 27, 2021

EDS UK Bake-In: Cake challenge winners

As we move onto the bread challenge, our judges have been looking at all the entries. We received an amazing 75 adult and 16 junior entries, thank you all for taking part and good luck in the upcoming challenges.

February 23, 2021

First support group meeting for d/Deaf hard of hearing

We are really proud to announce our first support group meeting, inclusive for d/Deaf hard of hearing. At 1pm on 3rd March our wonderful Newcastle Area Coordinator will be opening up the online Newcastle meeting to anybody from across the UK to join if they have a hearing impairment and need a BSL interpreter to access support groups meetings .