January 18, 2019
Ambassador Anoushé Husain climbs with EDS in new short film
Ehlers-Danlos Support UK ambassador paraclimber Anoushé Husain talks about climbing being her physiotherapy for her EDS in a new short film released this week. The film, called If I Can, shows Anoushé as she ventures away from the indoor climbing wall and into outdoor climbing.
November 20, 2018
Statement on the law regarding cannabis-based products for chronic pain
The following joint statement is from the HMSA, the Ehlers-Danlos Support UK and The Ehlers-Danlos Society on cannabis-based products, chronic pain, and hypermobility-related disorders and is regarding changes in the law in the United Kingdom. As of the 1st November 2018 the UK Government has changed the law such that doctors can prescribe cannabis-based medicines.
August 31, 2018
Fundraiser of the month – August – Stephen Lister & Josh Waddell
Stephen Lister and close friend Josh Waddell took on the incredible challenge of the Edinburgh Marathon in May as Stephen's sister Abigail has EDS. Together they raised an incredible £10,484.53, including matched giving from Stephen's employer Apple Inc!
August 22, 2018
Meet our new Medical Advisory Panel members
EDS UK welcomes two new members to its Medical Advisory Panel. Lisa Jamieson, pharmacist and nutritionist and Dr Kate Barnes, GP, bring welcome additional knowledge, skills and experience to the panel.
June 30, 2018
Fundraiser of the month – June 2018 -Justin Searle
One of our amazing Area Coordinators Rhona’s husband, Justin Searle, took on the challenge of rowing a marathon on a Concept2 rower on 22nd June 2018, raising a fantastic £1010!
May 29, 2018
First EDS toolkit launched for GPs
The Royal College of General Practitioners (RCGP) has launched an Ehlers Danlos syndromes (EDS) toolkit for GPs and healthcare professionals. The toolkit, created in partnership with EDS UK and funded by the charity, aims to improve the recognition, response to and management of EDS in primary care.