What are the benefits of joining EDS UK?
Becoming an EDS UK Member enables you to:
This will give you the opportunity to meet other members local to you with Ehlers-Danlos syndrome, and their families. If you are a Facebook user you can also join your local Facebook group. This is a private group for members in your local area for mutual support and the exchange of ideas.
Receive priority booking and discounts to EDS UK conferences and events.
This discount also applies to those living in your household and carers.
Have access to members-only content on the EDS UK website.
This includes medical information, free download of all of our medical information sheets, videos of the talks from all of our conferences since 2012, past issues of our magazine Fragile Links going back to 1998, and access to our new friendly specialist directory, with more content being added all the time!
Receive the twice yearly magazine Fragile Links.
A weekly e-newsletter with all of the latest updates and events from your charity.
Be given the opportunity to help in any research projects that may take place
Gain information about EDS and be informed of medical advances
Upon becoming a member of EDS UK, you will receive a membership pack which includes:
The most recent edition of our twice yearly magazine Fragile Links
30 + Ehlers-Danlos syndrome Information sheets - sent by email
EDS UK membership card
Awareness posters and leaflets
EDS UK Badge
Useful information on areas such as medical alert jewellery and the Disability Law Service
Becoming a member of EDS UK enables us to continue to expand the charity and increase what is available to all of our members and to make our invisible, visible.