Membership Levels

EDS UK Membership is free for everyone for life. We also produce a members' magazine called Fragile Links which is circulated twice a year, containing management advice, charity news, life stories and more.

You can either purchase each issue at a time from our online shop or upgrade your membership to include a one year subscription.

EDS UK Membership

Free
Membership for life
  • Access to management videos on the website
  • Access to a local support group (UK patients and families only)
  • Access to a regional closed Facebook Support Group page (UK patients and families only)
  • Every friday afternoon we will send you our weekly newsletter containing charity updates, management advice, fundraising ideas and the latest developments related to the condition
  • Priority and discounted tickets to EDS UK conferences and events
  • An annual subscription to our magazine, Fragile Links Magazine. Containing articles on management advice written by expert medical professionals, charity news and patient stories. An annual subscription includes two editions (June & December)
  • Opportunity to share contact details with other members in your nearest Support Group. An updated list is posted twice a year with Fragile Links (UK patients and families only)
  • Access to digital copies of previous editions online

plus Fragile Links (UK delivery)

£8.00
Membership expires after 1 year
  • Access to management videos on the website
  • Access to a local support group (UK patients and families only)
  • Access to a regional closed Facebook Support Group page (UK patients and families only)
  • Every friday afternoon we will send you our weekly newsletter containing charity updates, management advice, fundraising ideas and the latest developments related to the condition
  • Priority and discounted tickets to EDS UK conferences and events
  • An annual subscription to our magazine, Fragile Links Magazine. Containing articles on management advice written by expert medical professionals, charity news and patient stories. An annual subscription includes two editions (June & December)
  • Opportunity to share contact details with other members in your nearest Support Group. An updated list is posted twice a year with Fragile Links (UK patients and families only)
  • Access to digital copies of previous editions online

plus Fragile Links (digital)

£5.00
Membership expires after 1 year
  • Access to management videos on the website
  • Access to a local support group (UK patients and families only)
  • Access to a regional closed Facebook Support Group page (UK patients and families only)
  • Every friday afternoon we will send you our weekly newsletter containing charity updates, management advice, fundraising ideas and the latest developments related to the condition
  • Priority and discounted tickets to EDS UK conferences and events
  • An annual digital subscription to our magazine, Fragile Links Magazine. Containing articles on management advice written by expert medical professionals, charity news and patient stories. An annual subscription includes two editions (June & December)
  • Opportunity to share contact details with other members in your nearest Support Group. An updated list is posted twice a year with Fragile Links  (UK patients and families only)
  • Access to digital copies of previous editions online

plus Fragile Links (Eur & Ireland)

£13.00
Membership expires after 1 year
  • Access to management videos on the website
  • Access to a local support group (UK patients and families only)
  • Access to a regional closed Facebook Support Group page (UK patients and families only)
  • Every friday afternoon we will send you our weekly newsletter containing charity updates, management advice, fundraising ideas and the latest developments related to the condition
  • Priority and discounted tickets to EDS UK conferences and events
  • An annual subscription to our magazine, Fragile Links Magazine. Containing articles on management advice written by expert medical professionals, charity news and patient stories. An annual subscription includes two editions (June & December). Delivery to a Europe or Ireland address.
  • Opportunity to share contact details with other members in your nearest Support Group. An updated list is posted twice a year with Fragile Links  (UK patients and families only)
  • Access to digital copies of previous editions online

plus Fragile Links (rest of World)

£18.00
Membership expires after 1 year
  • Access to management videos on the website
  • Access to a local support group (UK patients and families only)
  • Access to a regional closed Facebook Support Group page (UK patients and families only)
  • Every friday afternoon we will send you our weekly newsletter containing charity updates, management advice, fundraising ideas and the latest developments related to the condition
  • Priority and discounted tickets to EDS UK conferences and events
  • An annual subscription to our magazine, Fragile Links Magazine. Containing articles on management advice written by expert medical professionals, charity news and patient stories. An annual subscription includes two editions (June & December). Delivery to any worldwide address.
  • Opportunity to share contact details with other members in your nearest Support Group. An updated list is posted twice a year with Fragile Links  (UK patients and families only)
  • Access to digital copies of previous editions online