Research

We are building research funds to support our priority research areas of pain management, EDS and the gut, autonomic dysfunction and measuring outcomes and healthcare utilisation. We also help researchers to recruit for high quality, ethically-approved studies we believe will be of interest to our community. If you would like to donate towards any of our research funds please use the form below.

Below are details on current and completed research projects we are funding or supporting. You can donate to any current research project that is being funded with EDS UK funds by clicking the donate to this project button.

EDS neurogastroenterology research nurse

Researcher
Professor Qasim Aziz, Queen Mary University of London and The Royal London Hospital

Summary

We are proud to be funding a 12 month research nurse post in the Neurogastroenterology Clinic at the Royal London Hospital. The post supports a research programme studying the gut problems that occur in patients with EDS.

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RUDY Study: Rare diseases of the bone, joint and vessels study

Researcher
Dr M K Javaid & Professor R Luqmani, University of Oxford

Summary

The RUDY Study is open to those with rare disorders, as well their blood relatives. The study aims to understand more about all aspects of rare diseases of the bones, joints and/or blood vessels. These rare diseases affect less than 1 in 5000 people. Some of this new understanding will be used to develop new tests and treatments for patients with rare diseases of the bone, joints or blood vessels.

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