A Qualitative Study to Investigate the Impact of Ehlers-Danlos syndrome (EDS) on Occupation

Jessica James , occupational therapy student, Cardiff University.

Participant information sheet

The purpose of this study is to gain an understanding of how chronic conditions such as EDS affect a person’s occupations and occupational balance. People with Ehlers-Danlos syndrome (EDS) often experience symptoms such as dislocations, pain and other internal organ issues. This research aims to discover whether these symptoms affect a person’s occupations and the occupational balance of a person’s life and if they do, how do they affect a person’s ability to participate in their occupations and how does it affect a person’s schedule and balance of occupations.

To take part in the study you need to be:

  • A UK Resident
  • Diagnosed with Ehlers-Danlos syndrome
  • 18 years or older
  • Able to speak and read English
  • Able to participate in an interview using Zoom

Taking part in the study will require you to have a 45-60 minute interview  with the researcher online using Zoom. To take part in the study, please email the researcher.


Start date: 01/12/2020

Finish date: 20/01/2021

Should you have any queries about this study please use the details below:

Jessica James

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