A Qualitative Study to Investigate the Impact of Ehlers-Danlos syndrome (EDS) on Occupation
Jessica James , occupational therapy student, Cardiff University.
The purpose of this study is to gain an understanding of how chronic conditions such as EDS affect a person’s occupations and occupational balance. People with Ehlers-Danlos syndrome (EDS) often experience symptoms such as dislocations, pain and other internal organ issues. This research aims to discover whether these symptoms affect a person’s occupations and the occupational balance of a person’s life and if they do, how do they affect a person’s ability to participate in their occupations and how does it affect a person’s schedule and balance of occupations.
To take part in the study you need to be:
- A UK Resident
- Diagnosed with Ehlers-Danlos syndrome
- 18 years or older
- Able to speak and read English
- Able to participate in an interview using Zoom
Taking part in the study will require you to have a 45-60 minute interview with the researcher online using Zoom. To take part in the study, please email the researcher.
Start date: 01/12/2020
Finish date: 20/01/2021
Should you have any queries about this study please use the details below: