Diet and EDS research fund
Professor Qasim Aziz at the Wingate Institute of Neurogastroenterology, Barts & The London School of Medicine & Dentistry, Queen Mary University of London.
We are delighted to have raised £204,000 towards research to look at the effects of changes to diet on the symptoms of hypermobile EDS (hEDS).
Hypermobile Ehlers-Danlos syndrome (hEDS) is a connective tissue disorder due to an abnormality in how the body makes collagen. Connective tissue, including collagen, is the supporting ‘glue’ that holds the body together.
hEDS can cause considerable disability. Individuals with hEDS can experience a wide variety of seemingly unconnected symptoms like joint hypermobility, muscle and bone pain, and smooth skin that bruises easily. hEDS is also associated with a range of gut disorders, including acid reflux and irritable bowel syndrome. There are no drugs that target the connective tissue abnormality. Current treatments include medications to reduce symptoms, alongside physiotherapy for muscle and joint issues.
Good nutrition is essential for connective tissue repair and general healing. Certain nutrients are needed for the body to make collagen and support connective tissue function. Anecdotal evidence from a research study suggests that diet can have a positive impact on improving symptoms in EDS patients. It is therefore now important to study the impact of diet on symptoms in EDS in a scientific manner so that if a positive effect can be demonstrated then this should be adopted in routine clinical practice for the benefit of our patients.
This planned research will be led by Professor Qasim Aziz at the Wingate Institute of Neurogastroenterology, Barts & The London School of Medicine & Dentistry, Queen Mary University of London. The study is being designed with leading experts on the dietary management of chronic diseases. More information coming soon.
Start date: tbc
Finish date: tbc
Should you have any queries about this study please use the details below: