Diet and EDS research fund

Professor Qasim Aziz and Lisa Jamieson at the Wingate Institute of Neurogastroenterology, Barts & The London School of Medicine & Dentistry, Queen Mary University of London.

Diet and EDS research fund - Questions and Answers


We are urgently trying to raise £250,000 for research to look at the effects of changes to diet on the symptoms of hypermobile EDS (hEDS).

Hypermobile Ehlers-Danlos syndrome (hEDS) is a connective tissue disorder due to an abnormality in how the body makes collagen. Connective tissue, including collagen, is the supporting ‘glue’ that holds the body together.

hEDS can cause considerable disability. Individuals with hEDS can experience a wide variety of seemingly unconnected symptoms like joint hypermobility, muscle and bone pain, and smooth skin that bruises easily. hEDS is also associated with a range of gut disorders, including acid reflux and irritable bowel syndrome. There are no drugs that target the connective tissue abnormality. Current treatments include medications to reduce symptoms, alongside physiotherapy for muscle and joint issues.

Good nutrition is essential for connective tissue repair and general healing. Certain nutrients are needed for the body to make collagen and support connective tissue function. Identifying specific nutrients needed for connective tissue function is important.

This planned research will be conducted by Professor Qasim Aziz and Lisa Jamieson at the Wingate Institute of Neurogastroenterology, Barts & The London School of Medicine & Dentistry, Queen Mary University of London. The study will trial a diet-based nutritional intervention, to determine whether symptoms can be reduced in hEDS patients. This intervention has the potential to improve quality of life of patients with hEDS, through simple, inexpensive but effective dietary measures, whilst reducing costs for the National Health Service.

Start date: tbc

Finish date: tbc

Should you have any queries about this study please use the details below:

Kay Julier

T: 02087365604

Funded by:

More information on EDS research

Details of current and completed research projects