Nutritional knowledge, attitudes and dietary behaviours amongst individuals with HSD and hEDS and associations with co-morbid GI symptoms and fatigue.

Nikki Paiba and Miranda Harris, University of Worcester.

This study aims to look at relationships between nutritional knowledge, attitudes and behaviours in individuals with hypermobility spectrum disorders (HSD) or hypermobile Ehlers-Danlos syndrome (hEDS). Additionally, since gastrointestinal dysfunction and fatigue commonly coexist in individuals with HSD or hEDS, the study also aims to look for any associations between these nutritional factors and gastrointestinal symptoms and fatigue.

Nutritional knowledge, attitudes and behaviours are major factors contributing to healthy dietary patterns, and the data the researchers collect may lead to an improved awareness of the role of nutrition within the overall management of HSD and hEDS and its coexisting conditions.

Participation will involve completion of an anonymous online questionnaire, which should take approximately 15-20 minutes.

The researchers are looking for individuals who:

  • Are resident in the UK
  • Are aged 18 or over
  • Have received a medical diagnosis of hypermobility spectrum disorder (HSD) or hypermobile Ehlers-Danlos syndrome (hEDS) or a diagnosis of joint hypermobility syndrome (JHS), Ehlers-Danlos syndrome – hypermobile type or type 3 or symptomatic hypermobility prior to the updated EDS International Classification in 2017
  • Are not presently suffering from long Covid.

Your participation will help to better understand the levels of nutritional knowledge, attitudes and dietary habits amongst people with HSD or hEDS, and whether there are any associations between any of these factors, gastrointestinal symptoms and fatigue. The data collected may also lead to an improved awareness of the role of nutrition within the overall management of HSD and hEDS and its coexisting conditions.

For more information and to access the questionnaire please click here.

 

Start date: 01/06/2021

Finish date: 01/10/2021

Should you have any queries about this study please use the details below:

Nicola Paiba

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