Partners’ Coordinator – Matt Hillman
My name is Matt and I got involved with EDS UK because my wife Jen has EDS. Over the years I have learnt a lot about the often misunderstood condition and have become passionate about sharing and exchanging information on it with others who are affected. I’ve also learnt a lot about coping as a partner of someone with EDS, how to help them as well as myself in dealing with it. Partners, friends and family are important supports for those with EDS and are sometimes full time carers. It’s important that their challenges are understood too. If we can help ourselves we can help our loved ones and I strongly believe this can make things better for everyone.