Parents’ Coordinator – Sarah Griffin
I’m Sarah and am pleased to take on the role of Parents’ Coordinator. My daughter Annabelle was diagnosed with vascular EDS in Dec 2012 at the age of 3 years. It was a big shock to us and we found EDS UK a big support at a very hard time. I am very pleased and feel privileged to be part of their team. I hope I can bring comfort and advice to all parents that need that extra reassurance or help with EDS support.