Conditions linked to EDS

Many other conditions appear to commonly occur alongside the Ehlers-Danlos syndromes, particularly together with hypermobile EDS (hEDS) or the hypermobility spectrum disorders (HSD). Although an association has been demonstrated between hEDS/HSD and most of these problems, there is not yet enough scientific evidence to prove that one issue causes the other; this relationship is one that we may not understand until we find the gene or genes causing hEDS and HSD.

Among the ‘comorbidities’ that might present themselves along with hEDS/HSD are:

  • Malfunctioning of the autonomic (involuntary) nervous system (PoTS)
  • Gut dysmotility (an abnormality of the involuntary muscle movements that control digestion, which may cause the system to be very sluggish)
  • Chronic fatigue
  • Small fibre neuropathy (nerve damage causing pain which can be severe, pins and needles, numbness)
  • Cervico-cranial instability (complex problems caused by joint instability at the top of the neck)
  • Sleep disorders
  • Anxiety

This is not an exhaustive list. It is important to note that not everyone with hEDS/HSD will have all or any of these problems, but they are possible. This section provides information and management advice on living with the comorbidities.

What is EDS?

Information sheets, how to get a diagnosis, advice for medical profesisonals......