Conditions linked to EDS
Many other conditions appear to commonly occur alongside the Ehlers-Danlos syndromes, particularly together with hypermobile EDS (hEDS) or the hypermobility spectrum disorders (HSD). Although an association has been demonstrated between hEDS/HSD and most of these problems, there is not yet enough scientific evidence to prove that one issue causes the other; this relationship is one that we may not understand until we find the gene or genes causing hEDS and HSD.
Among the ‘comorbidities’ that might present themselves along with hEDS/HSD are:
- Malfunctioning of the autonomic (involuntary) nervous system (PoTS)
- Gut dysmotility (an abnormality of the involuntary muscle movements that control digestion, which may cause the system to be very sluggish)
- Chronic fatigue
- Small fibre neuropathy (nerve damage causing pain which can be severe, pins and needles, numbness)
- Cervico-cranial instability (complex problems caused by joint instability at the top of the neck)
- Sleep disorders
This is not an exhaustive list. It is important to note that not everyone with hEDS/HSD will have all or any of these problems, but they are possible. This section provides information and management advice on living with the comorbidities.