There is overlap in the symptoms of hypermobile Ehlers-Danlos syndrome and ME/chronic fatigue syndrome, though they are not the same condition. Sleep disorders, chronic pain, muscle deconditioning and nutritional deficiencies can all contribute to fatigue in hEDS. There is no medication to alleviate the tiredness itself, but certain drugs are effective for problems that go on to cause fatigue. Physiotherapy, prevention of deconditioning and good nutrition are also recommended.
Fibromyalgia and chronic fatigue
Dr Alan Hakim, Consultant Rheumatologist and Professor Rodney Grahame, Consultant Rheumatologist, The Hypermobility Unit, Hospital of St John and St Elizabeth, London
An examination of the chronic pain and fatigue than can accompany hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders, and what can be done.
Managing fatigue, sleeping problems and brain fog
Jenny Morrison, Neurogenetics Research Nurse, University College London Hospital
What you can do to improve the insomnia, long-term fatigue and feeling of fogginess that are so common in hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders.
Video: Chronic fatigue and fibromyalgia
Dr Alan Hakim, Consultant Rheumatologist, The Hypermobility Unit, Hospital of St John and St Elizabeth, London
Long-term pain and fatigue syndromes in hypermobile EDS.
Video: Management tips in EDS
Dr Hanadi Kazkaz, Consultant Rheumatologist, University College London Hospital
How to deal with pain and other symptoms in hypermobile EDS.
Action for M.E.
‘Pacing’ is about balancing activity and rest to enable you to manage chronic fatigue. This step-by-step guide is aimed at people with M.E. but is useful for anyone with a chronic, fluctuating illness. It explains the principles of pacing, how it could benefit you and practical ways of incorporating the methods into your life.