Healthcare professionals

In this section you’ll find information about the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) for GPs and other health professionals.

Physical therapy for hypermobility

Author
Rosemary Keer (retired), previously Lead Hypermobility Physiotherapist, The Hypermobility Unit, Hospital of St John & St Elizabeth & Dr Jane Simmonds, Hypermobility Lead, The Wellington Hospital, London and Senior Teaching Fellow, UCL Great Ormond Street Institute of Child Health

Summary
Guidance for physiotherapists on managing patients with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders.

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A midwife’s guide to pregnancy, birth, feeding and EDS

Author
Rachel Fitz-Desorgher, Midwife, Hypno-Lamaze Teacher, Infant Feeding Consultant and Parenting Consultant

Summary
A guide to the possible issues facing pregnant women with EDS to help midwives, GPs and other healthcare workers better support their patients.

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Royal College of GPs EDS toolkit

Summary
The Ehlers-Danlos syndromes were a 2017 priority area for the Royal College of GPs and resulted in a toolkit for GPs, funded by EDS UK.  The toolkit focuses mainly on hypermobile EDS (hEDS) and the related hypermobility spectrum disorders (HSD) and provides guidance to primary care teams to manage these complex conditions.

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Masterclasses in Hypermobility

Summary
Please note: these classes have been affected by the pandemic. Dates for the next masterclass are currently unknown. The 'Advancing Practice in Hypermobility' masterclasses for physiotherapists give an understanding of the assessment and management of hypermobility, hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders. Dr Jane Simmonds' classes are held regularly in London. For more information please email ich.events@ucl.ac.uk

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What is EDS?

Information sheets, how to get a diagnosis, advice for medical profesisonals......