In this section you’ll find information about the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) for GPs and other health professionals.
Physical therapy for hypermobility
Rosemary Keer (retired), previously Lead Hypermobility Physiotherapist, The Hypermobility Unit, Hospital of St John & St Elizabeth & Dr Jane Simmonds, Hypermobility Lead, The Wellington Hospital, London and Senior Teaching Fellow, UCL Great Ormond Street Institute of Child Health
Guidance for physiotherapists on managing patients with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders.
A midwife’s guide to pregnancy, birth, feeding and EDS
Rachel Fitz-Desorgher, Midwife, Hypno-Lamaze Teacher, Infant Feeding Consultant and Parenting Consultant
A guide to the possible issues facing pregnant women with EDS to help midwives, GPs and other healthcare workers better support their patients.
Royal College of GPs EDS toolkit
The Ehlers-Danlos syndromes were a 2017 priority area for the Royal College of GPs and resulted in a toolkit for GPs, funded by EDS UK. The toolkit focuses mainly on hypermobile EDS (hEDS) and the related hypermobility spectrum disorders (HSD) and provides guidance to primary care teams to manage these complex conditions.
Masterclasses in Hypermobility
Please note: these classes have been affected by the pandemic. Dates for the next masterclass are currently unknown. The 'Advancing Practice in Hypermobility' masterclasses for physiotherapists give an understanding of the assessment and management of hypermobility, hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders. Dr Jane Simmonds' classes are held regularly in London. For more information please email firstname.lastname@example.org