Mental health

Anxiety disorders and depression are commonly reported by people with hypermobile Ehlers-Danlos syndrome. There is evidence of a strong link between psychiatric problems and chronic pain in hEDS. There is some limited evidence pointing towards a connection between hEDS and other psychiatric conditions but more research is needed. Management of mental health problems can involve drug treatment and psychotherapy.

Video: Psychological issues and EDS

Presenter
Dr Netali Levi, Clinical Psychologist, The Hypermobility Unit, Hospital of St John and St Elizabeth, London

Summary

Managing the psychological issues associated with living with chronic pain.

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Video: Neurodevelopmental disorders – relevance of joint hypermobility

Presenter
Dr Jessica Eccles, Clinical Research Training Fellow, Brighton and Sussex Medical School

Summary

The presentation of research into neurodevelopmental disorders and generalised joint hypermobility.

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Video: Psychological features with EDS

Presenter
Dr Netali Levi, Clinical Psychologist, The Hypermobility Unit, Hospital of St John and St Elizabeth, London

Summary

Psychological problems that may occur in hypermobile EDS.

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Video: Mindfulness

Presenter
Dr Philip Bull, Consultant Rheumatologist and Deputy Chief Medical Advisor, HMSA

Summary

How therapies such as mindfulness and Alexander technique can help manage chronic conditions like EDS.

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Video: Coping with pain and fatigue

Presenter
Dr Chad Shepherd & Dr Netali Levi, Pain Psychologists, The Hypermobility Unit, Hospital of St John & St Elizabeth, London

Summary

A look at how cognitive behaviour therapy (CBT) is used to manage chronic pain conditions such as EDS.

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Link to Mind

Summary

Mind is a charity which supports anyone experiencing a mental health problem. Mind runs two helplines, one providing information on mental health issues and one giving advice on mental health-related law.

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Link to Samaritans

Summary

The Samaritans offers a safe place for you to talk any time you like, in your own way – about whatever’s getting to you. You don’t have to be suicidal.

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What is EDS?

Information sheets, how to get a diagnosis, advice for medical profesisonals......