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We are a remote based team.
We welcome calls/email from anybody touched by the the Ehlers-Danlos syndromes or from people looking to find out more about the condition or diagnosis through our advice line.
For all other enquiries, staff are available 09:00 – 17:00 Monday to Friday. If you prefer to email rather than talk you can use the email addresses below.
Address
International House
45-55 Commercial Street
London
E1 6BD
Telephone
Advice line and support: 0800 907 8518 (Open Tues and Fri, 9am-3pm)
General, membership & website: 0800 246 1391 (Open Mon-Fri, 9am-5pm) Please note – messages left about support or advice on your condition will not be responded to as staff are not trained to answer those questions. Please call the advice line.
Fundraising: 07947 775781 (Open Mon-Fri 9am-4pm)
Email:
Website orders and payments: info@ehlers-danlos.uk
Membership: membership@ehlers-danlos.uk
Advice line and support: adviceline@ehlers-danlos.uk
Fundraising: fundraising@ehlers-danlos.uk
GP Toolkit: gptoolkit.ehlers-danlos.org/what-is-the-gp-toolkit/
Schools Toolkit: theschooltoolkit.org/