News and events

23 April, 2021

EDS UK Bake-In: The winners!

We are delighted to announce the 2021 EDSUK Bake-In winners. The voting in both the adult and junior categories was SO close, but we had two clear winners of the Bake-In. Kat’s ‘follapsed’ zeba cake was a great hit with the Judges in Challenge 1 – not only the design, but also the recipe and bake. Kat, […]

15 April, 2021

New children’s picture book raising funds for EDS UK

Emily Joshua has written a new children’s picture book called Big Dog, Little Dog or Someone In-between. The book features a character with hEDS and is also raising funds for The Ehlers-Danlos Support UK. The author describes the book as: This is a story about a family trying to work out which puppy will be […]

10 April, 2021

EDS UK Bake-In: Easter showstopper challenge winners

We are delighted to announce the EDSUK Bake-In pastry challenge winners. The voting is now open! You can see all our winners and vote for your favourites by visiting our dedicated Bake-In website. Junior Winner Sisters Carlotta and Elise are our Junior winners for the Showstopper challenge and all of the judges agreed that this […]

26 March, 2021

EDS UK Bake-In: Pastry challenge winners

We are delighted to announce the EDSUK Bake-In pastry challenge winners. We move onto pastry next week and full details of how to take part can be found here. Junior (South London):  5 year old Sebastian is our very worthy winner with his amazing strawberry and mango tart! His mum is a zebra and he loves […]

13 March, 2021

EDS UK Bake-In: Bread challenge winners

We are delighted to announce the EDSUK Bake-In bread challenge winners. We move onto pastry next week and full details of how to take part can be found here. Junior: (London region) Zara is 14 years old and has a sister with hypermobile EDS. Zara loves baking to cheer her sister up when she is […]

27 February, 2021

EDS UK Bake-In: Cake challenge winners

As we move onto the bread challenge, our judges have been looking at all the entries. We received an amazing 75 adult and 16 junior entries, thank you all for taking part and good luck in the upcoming challenges. Full details of the various challenge weeks and how to take part can be found here. […]

23 February, 2021

First support group meeting for d/Deaf hard of hearing

We are really proud to announce our first support group meeting, inclusive for d/Deaf hard of hearing. At 1pm on 3rd March our wonderful Newcastle Area Coordinator will be opening up the online Newcastle meeting to anybody from across the UK to join if they have a hearing impairment and need a BSL interpreter to access […]

19 February, 2021

EDS UK member Mandy McCreight on next week’s DIY SOS

Next week’s DIY SOS features EDS UK member Mandy McCreight and her family from Bangor, Northern Ireland. The episode airs on Monday 22 February at 9pm and will show the transformation of the family’s home to make life easier for Mandy who has EDS and associated conditions. The show, which has helped several people with EDS, often […]

10 February, 2021

Five new webinars for members in February and March

We are delighted to announce two new webinars which are free to attend for members. You must preregister for the webinars and you can do so with the links below:   Buteyko breathing method with Jane Simpson: Saturday 20th February @ 11am Jane Simpson has been an asthmatic since birth and has hypermobility.  It was the […]

5 February, 2021

Emeritus Professor Howard Bird

We were sorry to hear today of the death, on 29 January 2021, of Emeritus Professor Howard Bird, former Professor of Pharmacological Rheumatology at the University of Leeds and early medical advisor to EDS UK. Professor Bird provided significant support to Valerie Burrows, the founder of EDS UK, when she set up the first EDS […]

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