News and events

20 July, 2021

EDS UK – 2021 Survey for Members

Our support services rely on successful applications for funders like the National Lottery. Our annual survey helps us to secure funding for the future as well as getting feedback from members. The survey also feeds into the charities strategic plans for the future. It should take you no longer than 7 mins to complete. TAKE […]

27 May, 2021

School toolkit launched to support pupils with EDS or hypermobility-related problems

Today, EDS UK and the Hypermobility Syndromes Association (HMSA) launch an online toolkit for schools to support pupils with EDS and hypermobility-related disorders. The free resource aims to provide school staff with information about symptomatic hypermobility and the Ehlers-Danlos syndromes (EDS) and how they may affect primary and secondary pupils at school. It emphasises that […]

23 April, 2021

EDS UK Bake-In: The winners!

We are delighted to announce the 2021 EDSUK Bake-In winners. The voting in both the adult and junior categories was SO close, but we had two clear winners of the Bake-In. Kat’s ‘follapsed’ zeba cake was a great hit with the Judges in Challenge 1 – not only the design, but also the recipe and bake. Kat, […]

15 April, 2021

New children’s picture book raising funds for EDS UK

Emily Joshua has written a new children’s picture book called Big Dog, Little Dog or Someone In-between. The book features a character with hEDS and is also raising funds for The Ehlers-Danlos Support UK. The author describes the book as: This is a story about a family trying to work out which puppy will be […]

10 April, 2021

EDS UK Bake-In: Easter showstopper challenge winners

We are delighted to announce the EDSUK Bake-In pastry challenge winners. The voting is now open! You can see all our winners and vote for your favourites by visiting our dedicated Bake-In website. Junior Winner Sisters Carlotta and Elise are our Junior winners for the Showstopper challenge and all of the judges agreed that this […]

26 March, 2021

EDS UK Bake-In: Pastry challenge winners

We are delighted to announce the EDSUK Bake-In pastry challenge winners. We move onto pastry next week and full details of how to take part can be found here. Junior (South London):  5 year old Sebastian is our very worthy winner with his amazing strawberry and mango tart! His mum is a zebra and he loves […]

13 March, 2021

EDS UK Bake-In: Bread challenge winners

We are delighted to announce the EDSUK Bake-In bread challenge winners. We move onto pastry next week and full details of how to take part can be found here. Junior: (London region) Zara is 14 years old and has a sister with hypermobile EDS. Zara loves baking to cheer her sister up when she is […]

27 February, 2021

EDS UK Bake-In: Cake challenge winners

As we move onto the bread challenge, our judges have been looking at all the entries. We received an amazing 75 adult and 16 junior entries, thank you all for taking part and good luck in the upcoming challenges. Full details of the various challenge weeks and how to take part can be found here. […]

23 February, 2021

First support group meeting for d/Deaf hard of hearing

We are really proud to announce our first support group meeting, inclusive for d/Deaf hard of hearing. At 1pm on 3rd March our wonderful Newcastle Area Coordinator will be opening up the online Newcastle meeting to anybody from across the UK to join if they have a hearing impairment and need a BSL interpreter to access […]

19 February, 2021

EDS UK member Mandy McCreight on next week’s DIY SOS

Next week’s DIY SOS features EDS UK member Mandy McCreight and her family from Bangor, Northern Ireland. The episode airs on Monday 22 February at 9pm and will show the transformation of the family’s home to make life easier for Mandy who has EDS and associated conditions. The show, which has helped several people with EDS, often […]

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