Fundraising news

15 April, 2021

New children’s picture book raising funds for EDS UK

Emily Joshua has written a new children’s picture book called Big Dog, Little Dog or Someone In-between. The book features a character with hEDS and is also raising funds for The Ehlers-Danlos Support UK. The author describes the book as: This is a story about a family trying to work out which puppy will be […]

28 July, 2020

The first ever virtual edition of Prudential RideLondon

The first ever virtual edition of Prudential RideLondon – the world’s greatest festival of cycling – will take place on 15 and 16 August (the event weekend) to celebrate cycling and raise funds to help save the UK’s charities. The Ehlers-Danlos Support UK, like many other charities, has been hugely impacted by the Covid-19 pandemic […]

2 April, 2020

A message to our members and supporters from our CEO

COVID-19 is hitting every person and organisation in the world hard, changing the way we live and taking away the freedoms we live by. Charities are unfortunately no different and many small, medium and large charities are having to make difficult and unprecedented decisions which will affect their staff and the very people they are […]

31 August, 2018

Fundraiser of the month – August – Stephen Lister & Josh Waddell

Stephen Lister and close friend Josh Waddell took on the incredible challenge of the Edinburgh Marathon in May as Stephen’s sister Abigail has EDS. Abigail was finally diagnosed in 2017 after years of struggling to know what was wrong. She lives with daily pain, despite have 10 surgeries. Together, Stephen and Josh raised a fantastic […]

30 June, 2018

Fundraiser of the month – June 2018 -Justin Searle

One of our amazing Area Coordinators Rhona’s husband, Justin Searle, took on the challenge of rowing a marathon on a Concept2 rower on 22nd June 2018. Justin said before his challenge “Rowing a marathon on an ergo (static rowing machine) is no mean feat. The furthest I have ever rowed on one so far is […]

14 February, 2018

Fundraiser of the Month – January 2018

My father in law recently lost a very brave battle with cancer. He raised money for charity all throughout his life including abseiling from the forth rail bridge only months after a stroke. He was a civil engineer in Edinburgh and had a great interest in the new bridge, but unfortunately never got to see […]

31 August, 2017

Fundraiser of the Month -October 2017 – Kate Owen

  Myself, my partner Craig and my beloved Dog ‘Sam Dog’ are running the Glasgow half Marathon on the 1st of October to raise awareness & money Ehlers-Donlas Support UK. A very good friend of mine Friday Smith suffers with EDS, here is her story………. As a child I was always unusually bendy. I started having mild back pains […]

1 August, 2017

Fundraiser of the month – August 2017- EPIC Golfing Society

The EPIC – Every Professional in Construction – Golfing Society chose The Ehlers-Danlos Support UK as one of the beneficiaries of its 40th Anniversary Charity Golf Day, held on 5th July 2017 at the beautiful Ashridge Golf Club in Hertfordshire. The day and evening event raised a fantastic £8099.30 for EDS UK! Our Managing Director […]

31 July, 2017

Fundraiser of the Month – July 2017 – Doug Stanway

Doug Stanway did the London to Paris Bike ride and fundraised an incredible £6,046! With more money still coming in! It was a superb and very moving event on 2 different levels. Firstly it made me reflect on what my daughter and our whole family have been through it the last 4 years as Evie […]

30 June, 2017

Fundraiser of the Month – June 2017 – Danny and James

So we completed the 100 holes in 13 hours with a few stops along the was completely smashing our expected time but 3 and a half hours 🙂 so happy to have competed the challenge i on first look we have managed to raise over £4000 for eds support. Thank everyone how has helped organise […]

18 May, 2017

Fundraiser of the Month – May 2017 – Eloise, Tai and Samuel

Thank you to Eloise, Tai and Samuel who gruelled a 100km trek, from London to Brighton and for raising an incredible £6,500 for EDS UK. In 2014 I met one of the most important figures in my life: my ex-girlfriend Darcey…dramatic whirlwind romance ensued. At the time she had recently been diagnosed with Ehlers-Danlos Syndrome, […]

10 March, 2017

Fundraiser of the Month – March 2017 – University of Warwick Wind Orchestra

On Friday 10th March between 9am and 9pm, the University of Warwick Wind Orchestra hosted a 12 hour Playathon in the Warwick Students’ Union Atrium in order to raise money and awareness for Ehlers-Danlos Support UK. The day was a huge success and featured performances from the Wind Orchestra alongside its three small ensembles: Feeling […]

13 January, 2017

Fundraiser of the Month – January 2017 – Ruby Jones

If raising over £1,100 for a charity that is extremely close to my heart isn’t enough to get my year off to a great start then I do not know what is! January can be a very depressing time of year for everyone. Whether you are a uni student, at work or back to school, […]

30 December, 2016

Fundraiser of the Month – December 2016 – KEVI Sixth Form

After last year’s very successful KEVI Spinathon which raised over £6000 for Children in Need we are back and this time raising money for a charity that is very personal to one of our students who has Ehlers Danlos syndrome. Year 12 and year 13 competed to raise the most money and cycle the most […]

2 November, 2016

Fundraiser of the year 2016: Timperley Boneshakers

Over the weekend of 24th and 25th September 2016 Timperley Boneshakers completed their annual charity cycling challenge. Pedalling through some fantastic scenery across the Cheshire plains and Shropshire countryside, into the Welsh border then staying overnight in Shrewsbury, returning back to Timperley on the Sunday. The Challenge was open to male and female cyclists and consisted […]

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