Physiotherapy and self-management

Physiotherapy, exercise and activity play important roles in the management of hypermobility-related disorders. Not all physiotherapists are familiar with the complex symptoms of EDS; it is important to find a physio who knows about hypermobility and to learn to self-manage your condition.

Managing dislocations and subluxations in hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders

Author
Jason Parry, Extended Scope Physiotherapist / Clinical Specialist Physiotherapist, University College London Hospital and The Hypermobility Unit, Hospital of St John and St Elizabeth, London

Summary

Why people with hEDS and HSD are prone to dislocations, and what to do if this happens to you.

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Exercise and movement for adults with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders

Author
Jason Parry, Extended Scope Physiotherapist / Clinical Specialist Physiotherapist, University College London Hospital and The Hypermobility Unit, Hospital of St John and St Elizabeth, London

Summary

The importance of movement and gradual exercise in the management of hEDS and HSD.

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Physiotherapy for adults with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders

Author
Jason Parry, Extended Scope Physiotherapist / Clinical Specialist Physiotherapist, University College London Hospital and The Hypermobility Unit, Hospital of St John and St Elizabeth, London

Summary

How physiotherapy can help you, what to expect, and working with your local services.

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Video: Occupational therapy

Presenter
Jo Southall, Occupational Therapist

Summary

How occupational therapy can help you manage your EDS - a look at measures such as pacing, sleep hygiene, and the use of disability aids.

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Video: Physiotherapy management of hypermobility spectrum disorders and hypermobile Ehlers-Danlos syndrome

Presenter
Dr Jane Simmonds, Senior Teaching Fellow, Great Ormond Street Institute of Child Health, UCLH and Specialist Physiotherapist, The Hypermobility Unit, Hospital of St John and St Elizabeth, London

Summary

The importance of physiotherapy and exercise in EDS/HSD.

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Video: Why nutrition is important

Presenter
Lisa Jamieson, Research Fellow, Wingate Institute for Neurogastroenterology, London

Summary

How good nutrition can influence EDS, despite it being a genetic condition.

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Video: Management tips in EDS

Presenter
Dr Hanadi Kazkaz, Consultant Rheumatologist, University College London Hospital

Summary

How to deal with pain and other symptoms in hypermobile EDS.

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Video: Physiotherapy and EDS – what is working?

Presenter
Dr Jane Simmonds, Lead Hypermobility Physiotherapist, The Hypermobility Unit, Hospital of St John & St Elizabeth and Senior Teaching Fellow, UCL Great Ormond Street Institute of Child Health

Summary

Physical therapy as a form of management for EDS.

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What is EDS?

Information sheets, how to get a diagnosis, advice for medical profesisonals......