Our research position

EDS UK, working independently and with other organisations, intends to:

  • Build a research fund to support the best quality research worldwide
  • Improve clinical care options for all people with EDS through research to develop the evidence base for existing and potential new treatments
  • Improve our understanding of EDS through research to identify new genes and mutations and find out how they influence the presentation of EDS in different people
  • Improve the prospects for people with EDS in the UK to participate in research and receive treatments appropriate to their diagnosis
  • Develop greater awareness of EDS UK’s commitment to research among the EDS research and clinical community worldwide, potential future partners in treatment development and delivery (including industry, healthcare providers and other connective tissue charities) and supporters in general