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We can help

EDS UK is the only UK charity to offer support to people touched by all types of Ehlers-Danlos syndrome


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Why the Zebra?

When you hear the sound of hooves, think horses, not zebras!


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Are you up for a challenge?

Get involved and help make our #invisiblevisible


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Nobody should be left to fight on their own. Every person with EDS should have access to the appropriate medical services and care.

That is why we are here, that is what drives us to work everyday. To offer support to anybody touched by Ehlers-Danlos syndrome

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What is EDS?



A genetic disorder in which the structure of connective tissue is abnormal due to a gene mutation.......

 

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Featured news and stories

 

Management & wellbeing conference

We are proud to announce that The Ehlers-Danlos Support UK and Hypermobility Syndromes Association will be jointly hosting the Management and Wellbeing Conferece on Saturday 30th September and Sunday 1st October at Chesford Grange, Warwick. Tickets are available here

Aug 2017

 

New management book

Whether you are newly diagnosed, or a patient or healthcare professional this ground breaking book, reviewed by leading experts and reflecting the most up to date knowledge from the EDS International Classification 2017.

June 2017

 

New London based hypermobility clinic for children and families

Professor Rodney Grahame announces a new London based hypermobility clinic for children and families.

June 2017

 

CCI North West Tonight TV Interview

North West Tonight TV interviewed Kay Julier about the availability of fusion surgery for CCI on the NHS.

May 2017

 
 

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About EDS UK

© Copyright 2004-2014 The Ehlers-Danlos Support UK

Registered Address: Devonshire House, Manor Way, Borehamwood, Hertfordshire WD6 1QQ
The Ehlers-Danlos Support UK is a Charity registered in England and Wales (1157027) and Scotland (SC046712)
Registered Company No. 8924646.

Work of The Ehlers-Danlos Support UK is supported by a grant from the Big Lottery Fund, funded by the National Lottery.