April 2, 2020
A message to our members and supporters from our CEO
A message to our supporters and members from our CEO about COVID-19
March 19, 2020
Postponement of 2020 vascular EDS conference
We are sorry to announce that we have taken the difficult decision to postpone the vascular EDS conference.
March 19, 2020
New online support services launched
In response to the recent outbreak of COVID-19 and the increased likelihood that many of our members may become more isolated than usual, we are moving many of our face to face support groups online and proving two new support services.
March 12, 2020
EDS and coronavirus (COVID-19)
It is understandable that people with EDS and associated health challenges are worried about their risk of contracting the new coronavirus which causes the illness COVID-19. As the virus is newly identified, there is very little known about how it affects people and there is no specific advice for people with EDS. It is not proven that people with EDS are any more likely than others to catch or become ill from viruses. Therefore we advise following the NHS's advice on social distancing, hygiene and what to do if you have coronavirus symptoms.
March 4, 2020
BSR statement on developing hypermobility guidelines
The British Society of Rheumatology has today issued a statement saying that it will not be developing guidelines on the diagnosis and management of hypermobility-related problems due to insufficient evidence to inform guidelines. The statement includes reference to the Ehlers-Danlos syndromes toolkit we developed in partnership with the Royal College of GPs (RCGP), released in May 2018.
February 21, 2020
EDS UK signs up to the disability confident scheme
The Ehlers-Danlos Support UK is proud to be one of the 16,000 signed up to, and committed to equality in the workplace.