EDS and coronavirus (COVID-19)

Information about COVID-19 for people with EDS.


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EDS UK is the only UK charity to offer support to people touched by all types of Ehlers-Danlos syndrome


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Nobody should be left to fight on their own. Every person with EDS should have access to the appropriate medical services and care.

That is why we are here, that is what drives us to work everyday. To offer support to anybody touched by Ehlers-Danlos syndrome.

What you can do

Featured news and stories

June 1, 2020

Volunteer week 2020

Volunteers week is an annual celebration of the contribution that millions of people make across the UK through volunteering. Here at EDS UK we want to celebrate and thank our volunteer Area Coordinators and our Trustees who give their time to make a difference.

May 18, 2020

My Journey to Diagnosis and Beyond

A patient story of living with EDS , her journey to diagnosis and the importance of May Awareness

April 2, 2020

A message to our members and supporters from our CEO

A message to our supporters and members from our CEO about COVID-19

March 19, 2020

Postponement of 2020 vascular EDS conference

We are sorry to announce that we have taken the difficult decision to postpone the vascular EDS conference.

March 19, 2020

New online support services launched

In response to the recent outbreak of COVID-19 and the increased likelihood that many of our members may become more isolated than usual, we are moving many of our face to face support groups online and proving two new support services.

March 12, 2020

EDS and coronavirus (COVID-19)

It is understandable that people with EDS and associated health challenges are worried about their risk of contracting the new coronavirus which causes the illness COVID-19. As the virus is newly identified, there is very little known about how it affects people and there is no specific advice for people with EDS. It is not proven that people with EDS are any more likely than others to catch or become ill from viruses. Therefore we advise following the NHS's advice on social distancing, hygiene and what to do if you have coronavirus symptoms.