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We can help

EDS UK is the only UK charity to offer support to people touched by all types of Ehlers-Danlos syndrome


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Why the Zebra?

When you hear the sound of hooves, think horses, not zebras!


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Are you up for a challenge?

Get involved and help make our #invisiblevisible


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Nobody should be left to fight on their own. Every person with EDS should have access to the appropriate medical services and care.

That is why we are here, that is what drives us to work everyday. To offer support to anybody touched by Ehlers-Danlos syndrome

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Management Diagnosis Hypermobility Support Groups

What is EDS?



A genetic disorder in which the structure of connective tissue is abnormal due to a gene mutation.......

 

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Help us support those touched by Ehlers-Danlos syndrome and make their #invisiblevisible


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Featured news and stories

 

Vascular EDS Radio Interview

Three counties radio interview Kay Julier about vascular EDS and baby girl Effie was taken away from her parents because of her vEDS.

May 2017

 

2016 Christmas Cards

Our Christmas cards are on sale now! There are 12 different designs to choose from and are a great way to raise awareness.

November 2016

 

UK's first vascular EDS conference

We are proud to announce that Annabelle’s Challenge and The Ehlers-Danlos Support UK will be jointly hosting the first ever UK Vascular EDS Conference on Saturday 6th and Sunday 7th May 2017 in Manchester.

September 2016

 

Services for male EDS UK members

EDS UK has launched new services aimed at male members. Including mini meets and a dedicated skype service.

December 2015

 
 

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Could you be an EDS UK Superhero?

 
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About EDS UK

© Copyright 2004-2014 The Ehlers-Danlos Support UK

Registered Address: Devonshire House, Manor Way, Borehamwood, Hertfordshire WD6 1QQ
The Ehlers-Danlos Support UK is a Charity registered in England and Wales (1157027) and Scotland (SC046712)
Registered Company No. 8924646.

Work of The Ehlers-Danlos Support UK is supported by a grant from the Big Lottery Fund, funded by the National Lottery.