2020 Christmas Cards

Our 2020 Christmas Cards are on sale now in the shop. Get yours now, they are going fast!

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EDS and coronavirus (COVID-19)

Information about COVID-19 for people with EDS.

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We can help

EDS UK is the only UK charity to offer support to people touched by all types of Ehlers-Danlos syndrome

Find out more

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Nobody should be left to fight on their own. Every person with EDS should have access to the appropriate medical services and care.

That is why we are here, that is what drives us to work everyday. To offer support to anybody touched by Ehlers-Danlos syndrome.

What are the Ehlers-Danlos syndromes?

Management and medical information for people with EDS

Get Involved

Your fundraising, donations, subscription and volunteering could be life-changing

Support Groups

Find your nearest Support Group and reach out to others who understand

What you can do

Donate Today

Help us support those touched by Ehlers-Danlos syndrome and make their #invisiblevisible

Donate Today

Help us support those touched by Ehlers-Danlos syndrome and make their #invisiblevisible

Join Us

Become a free member of EDS UK and be kept up to date with the charity and EDS

Join Us

Become a free member of EDS UK and be kept up to date with the charity and EDS

Subscribe to Fragile Links, the UK's only magazine dedicated to EDS, contianing management advice, charity news and member stories

Featured news and stories

July 28, 2020

The first ever virtual edition of Prudential RideLondon

The first ever virtual edition of Prudential RideLondon. Take part today and help save UK charities.

June 1, 2020

Volunteer week 2020

Volunteers week is an annual celebration of the contribution that millions of people make across the UK through volunteering. Here at EDS UK we want to celebrate and thank our volunteer Area Coordinators and our Trustees who give their time to make a difference.

May 18, 2020

My Journey to Diagnosis and Beyond

A patient story of living with EDS , her journey to diagnosis and the importance of May Awareness

April 2, 2020

A message to our members and supporters from our CEO

A message to our supporters and members from our CEO about COVID-19

March 19, 2020

Postponement of 2020 vascular EDS conference

We are sorry to announce that we have taken the difficult decision to postpone the vascular EDS conference.

March 19, 2020

New online support services launched

In response to the recent outbreak of COVID-19 and the increased likelihood that many of our members may become more isolated than usual, we are moving many of our face to face support groups online and proving two new support services.