See our new film 12-24 to meet some of the young people we're working for

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We can help

EDS UK is the only UK charity to offer support to people touched by all types of Ehlers-Danlos syndrome

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Are you up for a challenge?

Get involved and help make our #invisiblevisible

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Nobody should be left to fight on their own. Every person with EDS should have access to the appropriate medical services and care.

That is why we are here, that is what drives us to work everyday. To offer support to anybody touched by Ehlers-Danlos syndrome.

What you can do

Featured news and stories

December 11, 2017

“12 – 24” – A film about EDS – Raising funds for vital research to help make lives better

Today EDS UK is launching "12-24” (supported by The Ehlers-Danlos Society).  This is a short film that marks the start of a major fundraising campaign to pay for research to test whether dietary changes can reduce symptoms and improve quality of life  for people with EDS.

December 5, 2017

Could you be our new treasurer?

We're looking for a new Treasurer who will also join our Board of Trustees. If you are financially confident, enthusiastic about making a difference and want to gain national board experience, this could be just the role for you

November 21, 2017

2017 Management and wellbeing conference videos

Videos from our our Management and wellbeing conference in 2017

October 31, 2017

EDS UK Christmas cards are here!

Buy your Christmas cards here from our selection of 12 designs. All profits go to EDS UK.

September 22, 2017

NICE guidelines for chronic fatigue syndrome/ME to be updated

EDS UK recently submitted comments on the NICE guidelines for chronic fatigue syndrome/ME as NICE had decided there was no new evidence to warrant an update. As a result, the guidelines will be modified, which is great news.

August 31, 2017

Fundraiser of the Month -October 2017 – Kate Owen

Philip Evans and 6 of his friends climbed Mount Kilimanjaro in August to raise money and awareness for Ehlers-Danlos Syndrome. 

Thank you to everyone who took part and those who donated, we raised an incredible £2,472.42