New webinars for members

We are delighted to announce a series of webinars for members in February and March


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Become a home hero!!

Be a hero and virtual fundraise for The Ehlers-Danlos Support UK.


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We can help

EDS UK is the only UK charity to offer support to people touched by all types of Ehlers-Danlos syndrome


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Nobody should be left to fight on their own. Every person with EDS should have access to the appropriate medical services and care.

That is why we are here, that is what drives us to work everyday. To offer support to anybody touched by Ehlers-Danlos syndrome.

What you can do

Featured news and stories

February 27, 2021

EDS UK Bake-In: Cake challenge winners

As we move onto the bread challenge, our judges have been looking at all the entries. We received an amazing 75 adult and 16 junior entries, thank you all for taking part and good luck in the upcoming challenges.

February 23, 2021

First support group meeting for d/Deaf hard of hearing

We are really proud to announce our first support group meeting, inclusive for d/Deaf hard of hearing. At 1pm on 3rd March our wonderful Newcastle Area Coordinator will be opening up the online Newcastle meeting to anybody from across the UK to join if they have a hearing impairment and need a BSL interpreter to access support groups meetings .

February 19, 2021

EDS UK member Mandy McCreight on next week’s DIY SOS

Next week's DIY SOS features EDS UK member Mandy McCreight and her family from Bangor, Northern Ireland. The episode airs on Monday 22 February at 9pm and will show the transformation of the family's home to make life easier for Mandy who has EDS and associated conditions.

February 10, 2021

Five new webinars for members in February and March

We are delighted to announce four new webinars for members in February in March. All notes by professionals they cover a range of topics including buteyko, mindfulness, tapping and bladder issues in children.

February 5, 2021

Emeritus Professor Howard Bird

We were sorry to hear today of the death, on 29 January 2021, of Emeritus Professor Howard Bird, former Professor of Pharmacological Rheumatology at the University of Leeds and early medical advisor to EDS UK.

January 29, 2021

All day zoom for Time To Talk Day

Thursday 4th February is time to talk day, a day that aims to bring the nation together to get talking and break the silence around mental health problems. To encourage people to talk, share their experiences and gain strength from others, we will be running a whole day Time to Talk drop in on zoom.