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EDS UK 2021 Survey

We would love to hear from our members to shape our future.


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Be a hero and virtual fundraise for The Ehlers-Danlos Support UK.


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EDS UK is the only UK charity to offer support to people touched by all types of Ehlers-Danlos syndrome


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Nobody should be left to fight on their own. Every person with EDS should have access to the appropriate medical services and care.

That is why we are here, that is what drives us to work everyday. To offer support to anybody touched by Ehlers-Danlos syndrome.

What are the Ehlers-Danlos syndromes?

Management and medical information for people with EDS

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Support Groups

Find your nearest Support Group and reach out to others who understand

What you can do

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Become a free member of EDS UK and be kept up to date with the charity and EDS

Join Us

Become a free member of EDS UK and be kept up to date with the charity and EDS

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Subscribe to Fragile Links, the UK's only magazine dedicated to EDS, contianing management advice, charity news and member stories

Subscribe

Subscribe to Fragile Links, the UK's only magazine dedicated to EDS, contianing management advice, charity news and member stories

Featured news and stories

July 20, 2021

EDS UK – 2021 Survey for Members

Our 2021 survey aims to provide vital feedback to the Big Lottery Fund and helps us to secure continued funding. 

May 27, 2021

School toolkit launched to support pupils with EDS or hypermobility-related problems

EDS UK and the Hypermobility Syndromes Association (HMSA) launch an online toolkit for schools to support pupils with EDS and hypermobility-related disorders

April 23, 2021

EDS UK Bake-In: The winners!

We are delighted to announce the 2021 EDSUK Bake-In winners. The voting in both the adult and junior categories was SO close, but we had two clear winners of the Bake-In.

April 15, 2021

New children’s picture book raising funds for EDS UK

Emily Joshua has written a new children's picture book call "Big Dog, Little Dog or Someone In_between. The book features a character with hEDS and is also raising funds for The Ehlers-Danlos Support UK.

April 10, 2021

EDS UK Bake-In: Easter showstopper challenge winners

We are delighted to announce the EDSUK Bake-In Easter Showstopper challenge winners.

March 26, 2021

EDS UK Bake-In: Pastry challenge winners

We are delighted to announce the EDSUK Bake-In pastry challenge winners. We move onto the Easter showstopper next week