EDS UK Christmas Cards

Our Christmas cards are now available to buy from our online shop


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We can help

EDS UK is the only UK charity to offer support to people touched by all types of Ehlers-Danlos syndrome


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Are you up for a challenge?

Get involved and help make our #invisiblevisible


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Nobody should be left to fight on their own. Every person with EDS should have access to the appropriate medical services and care.

That is why we are here, that is what drives us to work everyday. To offer support to anybody touched by Ehlers-Danlos syndrome.

What you can do

Featured news and stories

November 21, 2017

2017 Management and wellbeing conference videos

Videos from our our Management and wellbeing conference in 2017

October 31, 2017

EDS UK Christmas cards are here!

Buy your Christmas cards here from our selection of 12 designs. All profits go to EDS UK.

September 22, 2017

NICE guidelines for chronic fatigue syndrome/ME to be updated

EDS UK recently submitted comments on the NICE guidelines for chronic fatigue syndrome/ME as NICE had decided there was no new evidence to warrant an update. As a result, the guidelines will be modified, which is great news.

August 31, 2017

Fundraiser of the Month -October 2017 – Kate Owen

Philip Evans and 6 of his friends climbed Mount Kilimanjaro in August to raise money and awareness for Ehlers-Danlos Syndrome. 

Thank you to everyone who took part and those who donated, we raised an incredible £2,472.42 

August 30, 2017

Accessing insurance with a genetic condition

Accessing appropriate insurance can be a significant problem for many patients and families affected by genetic conditions. Genetic Alliance UK is working with the UK Forum for Genetics and Insurance to gather a better understanding of patients’ experiences, concerns and challenges when applying for insurance.

August 30, 2017

Management and wellbeing conference 2017

Our Management and Wellbeing Conference 2017, in collaboration with the HMSA, will take place on Saturday September 30th and Sunday October 1st at Chesford Grange Hotel, Warwick. The conference will provide members with practical health and wellbeing advice to manage their condition. Tickets are still available.