Search
Shopping Cart
December 17, 2020
Summary of Scottish youth consultation
In 2019, The Ehlers-Danlos Support UK commissioned a consultation with young people in Scotland with EDS and HSD. We wanted to find out about their experiences and needs in order to guide a dedicated support programme for young people. This important piece of work was made possible by a fantastic group of fundraisers in Scotland, led by Shelagh McKay. By raising almost £2,000, they kick-started this exciting project, which was coordinated by our amazing volunteer Area Coordinators in Edinburgh.
July 28, 2020
The first ever virtual edition of Prudential RideLondon
The first ever virtual edition of Prudential RideLondon. Take part today and help save UK charities.
June 1, 2020
Volunteer week 2020
Volunteers week is an annual celebration of the contribution that millions of people make across the UK through volunteering. Here at EDS UK we want to celebrate and thank our volunteer Area Coordinators and our Trustees who give their time to make a difference.
May 18, 2020
My Journey to Diagnosis and Beyond
A patient story of living with EDS , her journey to diagnosis and the importance of May Awareness
April 2, 2020
A message to our members and supporters from our CEO
A message to our supporters and members from our CEO about COVID-19
March 19, 2020
Postponement of 2020 vascular EDS conference
We are sorry to announce that we have taken the difficult decision to postpone the vascular EDS conference.