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May 29, 2018
First EDS toolkit launched for GPs
The Royal College of General Practitioners (RCGP) has launched an Ehlers Danlos syndromes (EDS) toolkit for GPs and healthcare professionals. The toolkit, created in partnership with EDS UK and funded by the charity, aims to improve the recognition, response to and management of EDS in primary care.
April 3, 2018
Listen to our BBC Radio 4 appeal
The charity appeal on BBC Radio 4 this Sunday will be for EDS UK. We are so pleased that the Ehlers-Danlos syndromes and the challenges of being diagnosed will get such great exposure. The appeal will be broadcast on Sunday 22nd April at 7.55am then again at 9.25pm the same day and at 3.25pm on Thursday 26th April.
February 14, 2018
Fundraiser of the Month – January 2018
Victoria Raised an incredible £525 taking part in her walking event
January 23, 2018
Managing EDS and muscle conditioning webinar
EDS UK was proud to host another interactive webinar with Dr. Jane Simmonds on Friday 19th January.
January 23, 2018
Men’s Support Group Survey
EDS UK would like to know where our male members are in the UK, and if you would like to have a men’s meeting in your area. Please kindly respond to our survey online here. It should take no longer than a few minutes.
January 12, 2018
Understanding PoTS webinar
EDS-UK where proud to host a live Q&A webinar on understanding and living with Postural Orthostatic Tachycardia Syndrome (POTS).