Nobody should be left to fight on their own. Every person with EDS should have access to the appropriate medical services and care.
That is why we are here, that is what drives us to work everyday. To offer support to anybody touched by Ehlers-Danlos syndrome
What is EDS?
A genetic disorder in which the structure of connective tissue is abnormal due to a gene mutation.......
Featured news and stories
New hEDS Management Book
Whether you are newly diagnosed, or a patient or healthcare professional this book brings together all the information you most want to know about the newly classified 'hypermobile Ehlers-Danlos syndrome' and 'hypermobility spectrum disorder.'
June 2017
New London based hypermobility clinic for children and families
Professor Rodney Grahame announces a new London based hypermobility clinic for children and families.
June 2017
CCI North West Tonight TV Interview
North West Tonight TV interviewed Kay Julier about the availability of fusion surgery for CCI on the NHS.
May 2017
Vascular EDS Radio Interview
Three counties radio interview Kay Julier about vascular EDS and baby girl Effie was taken away from her parents because of her vEDS.