December 11, 2017
“12 – 24” – A film about EDS – Raising funds for vital research to help make lives better
Today EDS UK is launching "12-24” (supported by The Ehlers-Danlos Society). This is a short film that marks the start of a major fundraising campaign to pay for research to test whether dietary changes can reduce symptoms and improve quality of life for people with EDS.
December 5, 2017
Could you be our new treasurer?
We're looking for a new Treasurer who will also join our Board of Trustees. If you are financially confident, enthusiastic about making a difference and want to gain national board experience, this could be just the role for you
November 21, 2017
2017 Management and wellbeing conference videos
Videos from our our Management and wellbeing conference in 2017
October 31, 2017
EDS UK Christmas cards are here!
Buy your Christmas cards here from our selection of 12 designs. All profits go to EDS UK.
September 22, 2017
NICE guidelines for chronic fatigue syndrome/ME to be updated
EDS UK recently submitted comments on the NICE guidelines for chronic fatigue syndrome/ME as NICE had decided there was no new evidence to warrant an update. As a result, the guidelines will be modified, which is great news.
August 31, 2017
Fundraiser of the Month -October 2017 – Kate Owen
Philip Evans and 6 of his friends climbed Mount Kilimanjaro in August to raise money and awareness for Ehlers-Danlos Syndrome.
Thank you to everyone who took part and those who donated, we raised an incredible £2,472.42