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March 19, 2019
Webinar recording available – get the most for your child from schools and professionals
On Tuesday, March 19th at 11am, the author of Ezra’s Extraordinary Stripes, educational and child psychologist Dr. Louise Lightfoot, came to our office to broadcast a free webinar for EDS UK members on how to get the most for your child from schools and professionals.
March 1, 2019
EDS UK sign the Rare Disease UK’s open letter to the Government
The Ehlers-Danlos Support UK signed the Rare Disease UK's open letter calling on the Government to review and refresh the UK Strategy for Rare Diseases.
January 18, 2019
Ambassador Anoushé Husain climbs with EDS in new short film
Ehlers-Danlos Support UK ambassador paraclimber Anoushé Husain talks about climbing being her physiotherapy for her EDS in a new short film released this week. The film, called If I Can, shows Anoushé as she ventures away from the indoor climbing wall and into outdoor climbing.
November 20, 2018
Statement on the law regarding cannabis-based products for chronic pain
The following joint statement is from the HMSA, the Ehlers-Danlos Support UK and The Ehlers-Danlos Society on cannabis-based products, chronic pain, and hypermobility-related disorders and is regarding changes in the law in the United Kingdom. As of the 1st November 2018 the UK Government has changed the law such that doctors can prescribe cannabis-based medicines.
August 31, 2018
Fundraiser of the month – August – Stephen Lister & Josh Waddell
Stephen Lister and close friend Josh Waddell took on the incredible challenge of the Edinburgh Marathon in May as Stephen's sister Abigail has EDS. Together they raised an incredible £10,484.53, including matched giving from Stephen's employer Apple Inc!
August 22, 2018
Meet our new Medical Advisory Panel members
EDS UK welcomes two new members to its Medical Advisory Panel. Lisa Jamieson, pharmacist and nutritionist and Dr Kate Barnes, GP, bring welcome additional knowledge, skills and experience to the panel.