May 17, 2019
New London-based rheumatology and hypermobility clinic for adults and children
Professors Rodney Grahame and Ian Chikanza announce the inauguration of a new clinic to be established within the Harley Street Clinic (HCA Healthcare) at 16 Devonshire Street, London, W1G 7AF. The clinic is a new concept of care offering world-class rheumatology care for adults, children and adolescents together with the full panoply of diagnosis and management of hypermobility-associated disorders including the Ehlers-Danlos syndromes and the hypermobility spectrum disorders.
May 7, 2019
EDS UK and Annabelle’s Challenge fund largest vascular EDS research database
The Ehlers-Danlos Support UK is delighted to announce that we and Annabelle's Challenge are jointly funding the creation of one of the largest vascular Ehlers-Danlos syndrome (vEDS) research databases in the world.
May 1, 2019
MAY AWARENESS CAMPAIGN 2019
TIME TO DIAGNOSIS
To help raise awareness of the Ehlers-Danlos syndromes and hypermobility spectrum disorders this May, help us to highlight how long it takes to get a diagnosis. Share your #timetodiagnosis image!
April 26, 2019
Dr Alan Hakim sabbatical
Consultant rheumatologist Dr Alan Hakim announced yesterday that he will be taking a 12 month sabbatical from clinical work to focus on education, training new colleagues and research.
March 19, 2019
Webinar recording available – get the most for your child from schools and professionals
On Tuesday, March 19th at 11am, the author of Ezra’s Extraordinary Stripes, educational and child psychologist Dr. Louise Lightfoot, came to our office to broadcast a free webinar for EDS UK members on how to get the most for your child from schools and professionals.
March 1, 2019
EDS UK sign the Rare Disease UK’s open letter to the Government
The Ehlers-Danlos Support UK signed the Rare Disease UK's open letter calling on the Government to review and refresh the UK Strategy for Rare Diseases.