EDS and coronavirus (COVID-19)

Information about COVID-19 for people with EDS.

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We can help

EDS UK is the only UK charity to offer support to people touched by all types of Ehlers-Danlos syndrome

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Get involved and help make our #invisiblevisible

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Nobody should be left to fight on their own. Every person with EDS should have access to the appropriate medical services and care.

That is why we are here, that is what drives us to work everyday. To offer support to anybody touched by Ehlers-Danlos syndrome.

What you can do

Featured news and stories

April 2, 2020

A message to our members and supporters from our CEO

A message to our supporters and members from our CEO about COVID-19

March 19, 2020

Postponement of 2020 vascular EDS conference

We are sorry to announce that we have taken the difficult decision to postpone the vascular EDS conference.

March 19, 2020

New online support services launched

In response to the recent outbreak of COVID-19 and the increased likelihood that many of our members may become more isolated than usual, we are moving many of our face to face support groups online and proving two new support services.

March 12, 2020

EDS and coronavirus (COVID-19)

It is understandable that people with EDS and associated health challenges are worried about their risk of contracting the new coronavirus which causes the illness COVID-19. As the virus is newly identified, there is very little known about how it affects people and there is no specific advice for people with EDS. It is not proven that people with EDS are any more likely than others to catch or become ill from viruses. Therefore we advise following the NHS's advice on social distancing, hygiene and what to do if you have coronavirus symptoms.

March 4, 2020

BSR statement on developing hypermobility guidelines

The British Society of Rheumatology has today issued a statement saying that it will not be developing guidelines on the diagnosis and management of hypermobility-related problems due to insufficient evidence to inform guidelines. The statement includes reference to the Ehlers-Danlos syndromes toolkit we developed in partnership with the Royal College of GPs (RCGP), released in May 2018.

February 21, 2020

EDS UK signs up to the disability confident scheme

The Ehlers-Danlos Support UK is proud to be one of the 16,000 signed up to, and committed to equality in the workplace.