SearchPersonal stories about 'Work'
Anne, one of our fabulous volunteers created an article on how EDS has affected people’s working life. Anne explains best why:
My working life has been entirely shaped by EDS. As different parts of me have broken down over the years I have shifted from one career to the next to accommodate my new limits. In the modern world where your ability to work not only impacts you financially but challenges your identity, social integration and mental health too, how do other people with EDS cope? What do we do when we can no longer do our chosen career? Here is a selection of experiences, including my own. – Anne
21st September 2023
Living with hEDS shouldn’t hold you back from living your dreams
Keziah Burt talks about how she manages her EDS and despite all the problems and challenges she has had, she has not let it stop her living her dreams as an artist
15th November 2022
Adapting my career and passions in light of living with EDS
Artist and Sculptor, and EDS UK Ambassador since September 2022, Jacob Chandler shares how he has adapted his career and passions in light of living with EDS. Have you had to adapt how you work because of your EDS? I have found my work because of my EDS. I originally went to study architecture sculpting was […]
12th July 2022
Me, my art & disabilities
Dashienova, is a 17-year-old artist currently seeking a diagnosis for Ehlers- Danlos syndrome. They are also autistic and non-binary. Dashienova's artwork focus's a lot on diversity and aesthetics, due to the lack of representation of people deviating from the typical ideas of who/what a person should be in media
25th January 2022
It’s very easy for me to view myself as the weak link
Bianca's story evaluates how easy it is for people with long term conditions and disabilities to see themselves as the weak link at work, when in truth we should be celebrating all the good work they do. She goes on to discuss how the pandemic turned her job upside down but also showed her how hybrid/home working and requesting reasonable adjustments is integral to making employment more sustainable for people with EDS
28th July 2021
Life is not merely surviving, we need meaning and purpose
Grahams story is one one of accepting that change had to come but also thinking outside the box to ensuring your life beyond work, is a fulfilling and rewarding one
28th July 2021
A better life through helping others
Cassandra talks about the challenge of being able to earn a decent living around fluctuating pain and energy levels, which often affect her mood and motivation. Through a journey of depression, she explains how she has arrived in a place where helping others develop and achieve their goals has helped her achieve a happier life
28th July 2021
Breath for no more than 99 Words
Liz talks about how a sudden decline in her health at 40 forced her to rethink how she worked and ultimately to the publication of her amazing book '99 Words', which features contributions from the inspirational people such as Nelson Mandela and Desmond Tutu.
23rd July 2021
Finding the right type of job
Marcia talks about how she has had to change the way she works and that it took time for her to discover the right type of job that was suitable for her condition, whilst staying within an industry she finds rewarding.
15th July 2021
A journey through work and volunteering
Anne talks about the challenges she has faced at work and about here journey into work and volunteering that is suitable for condition
1st July 2021
An exciting career but just not the one for me right now
Lauren's story about leaving a career she had always dreamed off was was difficult and sad but ultimately the change dramatically improved her physical and mental health