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Medical Advisory Panel
Our Medical Advisory Panel provides us with expert independent scientific and medical advice. By working with medical professionals we aim to raise the profile of the Ehlers-Danlos syndromes to achieve quicker and more accurate diagnosis. The panel consists of the following medical professionals: Dr Hanadi Kazkaz Jason Parry Dr Emma Reinhold Professor Jane Simmonds Their […]
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Send us a message
To send a message to the EDS UK office, please complete the form below. We aim to reply within two working days.
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Staff team
We have a small staff team who work closely together to provide our members and supporters with the best service we can. We are a remote organisation. We have an amazing team of volunteers who help us support the EDS community across the UK. The EDS UK staff team are: Susan Booth, Chief Executive Nikki Casey, […]
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Trustees
Our trustees are all volunteers with a broad range of skills and experience. They meet around five times a year to review progress against our plans and to plan for the future. As volunteers we do not provide direct contact details for them but if there is something you think needs discussing with them we […]
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Medical Advisory Panel
Our Medical Advisory Panel provides us with expert independent scientific and medical advice. By working with medical professionals we aim to raise the profile of the Ehlers-Danlos syndromes to achieve quicker and more accurate diagnosis. The panel consists of the following medical professionals: Dr Hanadi Kazkaz Jason Parry Dr Emma Reinhold Professor Jane Simmonds Their […]
-
Send us a message
To send a message to the EDS UK office, please complete the form below. We aim to reply within two working days.
-
Staff team
We have a small staff team who work closely together to provide our members and supporters with the best service we can. We are a remote organisation. We have an amazing team of volunteers who help us support the EDS community across the UK. The EDS UK staff team are: Susan Booth, Chief Executive Nikki Casey, […]
-
Trustees
Our trustees are all volunteers with a broad range of skills and experience. They meet around five times a year to review progress against our plans and to plan for the future. As volunteers we do not provide direct contact details for them but if there is something you think needs discussing with them we […]