Self management
Self-management is a key part of EDS (Ehlers-Danlos syndromes) and HSD (hypermobility spectrum disorders). The ability to take responsibility for one’s own well-being can be difficult; but with guidance and the correct information it can become achievable.
Self-management has a variety of aspects, including mental health, physical health, organisation and routine. These key elements put together can assist you in taking your health care into your own hands.
Pacing, physiotherapy exercises, dietary changes and good sleep hygiene are all examples of things you can begin to take on yourself, with time, practice and support to contribute to managing your EDS and HSD. Whilst we are still working hard to spread awareness and educate medical professionals and the general public, self-management is the highest priority for helping to manage your symptoms. Remember it is a process and will take time; please utilize the information below to assist with your self-management.
A Patient’s Response to Jason Parry’s Dislocation & Subluxation Management advice
Author
Sarah Miles, a patient with The Ehlers-Danlos syndromes
Summary
A patents practical perspective on advice given by Jason Parry
Building your own EDS toolkit
Author
Tips from support groups around the UK
Summary
Management tips for our support groups around the UK
Webinar: Pain in the hypermobile back
Presenter
Jeannie Di Bon, Movement Therapist and Hypermobility Specialist
Summary
Ideas and solutions to help you resolve back and pelvic pain
Movement Class with Bonnie Southgate May 2022
Presenter
Bonnie Southgate
Summary
A movement class with Bonnie Southgate
Webinar: A pain in the hypermobile foot
Presenter
Jeannie Di Bon, Movement Therapist and Hypermobility Specialist
Summary
Ideas and solutions to help you resolve foot pain
Tips by members – Kitchen gadgets
Author
The Ehlers-Danlos Support UK
Summary
We our asked members for tips and gadgets that help in the kitchen and allow them to cook and prepare food more easily. This article is taken from the Summer 2021 edition of Fragile Links