Trustees

Our trustees are all volunteers with a broad range of skills and experience. They meet around six times a year to review progress against our plans and to plan for the future. As volunteers we do not provide direct contact details for them but if there is something you think needs discussing with them we would encourage you to send us a message.

Mark Redhead – Chair since 2014 – Trustee since 2014

Frances Gawthrop – Trustee since 2001

Angela Hunter – Trustee since 1992

Clare Robinson – Trustee since 2014

Leah Mansfield – Trustee since 2013

Stephen Stacey – Trustee since 2017

Jason Pearce – Treasurer, Trustee since 2018

Adrian Steel – Trustee since 2018

Medical Advisory Panel

Our Medical Advisory Panel provides us with expert independent scientific and medical advice. By working with medical professionals we aim to raise the profile of the Ehlers-Danlos syndromes to achieve quicker and more accurate diagnosis. The panel: advises the charity on the provision of best-practice clinical treatments for people with EDS in the UK provides […]
Send us a message

To send a message to the EDS UK office, please complete the form below. We aim to reply within two working days.
Staff team

We have a small staff team who work closely together to provide our members and supporters with the best service we can. Most of the team is office-based in Hertfordshire but we love getting out and about and meeting our members. The EDS UK staff team is: Kane Carter, Office Administrator Mya Choudry, Helpline Manager […]
Vacancies

Current vacancies Senior Fundraising Manager We are currently looking for an experienced Senior Fundraising Manager to join our team. The role will be 21 hours per week, home-based with regular travel to Borehamwood, Herts. This is an exciting opportunity to take your community or individual giving fundraising career to the next level. With the opportunity to […]

Medical Advisory Panel

Our Medical Advisory Panel provides us with expert independent scientific and medical advice. By working with medical professionals we aim to raise the profile of the Ehlers-Danlos syndromes to achieve quicker and more accurate diagnosis. The panel: advises the charity on the provision of best-practice clinical treatments for people with EDS in the UK provides […]
Send us a message

To send a message to the EDS UK office, please complete the form below. We aim to reply within two working days.
Staff team

We have a small staff team who work closely together to provide our members and supporters with the best service we can. Most of the team is office-based in Hertfordshire but we love getting out and about and meeting our members. The EDS UK staff team is: Kane Carter, Office Administrator Mya Choudry, Helpline Manager […]
Vacancies

Current vacancies Senior Fundraising Manager We are currently looking for an experienced Senior Fundraising Manager to join our team. The role will be 21 hours per week, home-based with regular travel to Borehamwood, Herts. This is an exciting opportunity to take your community or individual giving fundraising career to the next level. With the opportunity to […]

Trustees

Medical Advisory Panel

Send us a message

Staff team

Vacancies