Protected: Dental webinar with Dr. Mike Harrison

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About us

The Ehlers-Danlos Support UK (EDS UK) was set up in 1987 to support, advise and inform those living with the Ehlers-Danlos syndromes.  Over 30 years later, we are the largest UK charity that exclusively represents and supports people with all types of EDS. We work to minimise the impact of EDS by making its diagnosis, […]

Contact the

This contact form is intended for the use of people affected by EDS or HSD who wish to contact their local support group for support. If you wish to contact multiple or singular groups about anything else please email membership@ehlers-danlos.org. 

Ambassadors

As everyone affected by The Ehlers-Danlos syndromes (EDS) or hypermobility spectrum disorders (HSD) knows, one of our biggest challenges is the lack of knowledge and understanding about the conditions. That’s why we need as many people as possible talking about these conditions and what it’s like to live with them. If you have media connections […]

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Become a partner

Partnering with The Ehlers-Danlos Support UK will bring lasting benefits to your company. Every business is different – so each of our partnerships is too. In our experience the best partnerships are those that demonstrate mutual understanding and a shared vision to achieve clear values and impact. If your company or a company you work with is interested […]

EDS UK Community Champion Awards

It’s well known that people with additional needs often struggle to access the spaces, amenities and services that others take for granted. In an effort to recognise and highlight organisations which have embraced inclusivity and to inspire others to do the same, we’ve launched our own Community Champion Awards. The awards will also celebrate innovative […]

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Donate to EDS UK

EDS study with Symprove™

11.03.26  PLEASE NOTE – DUE TO OVERWHLEMING DEMAND AND APPLICATIONS, RECRUITMENT IS NOW CLOSED Thank you to everyone who applied. PARTICIPANT INFORMATION IRAS Reference Number: 364450 Please read this information before you decide whether you would like to take part. The application link is at the bottom of the page. Study title: A single-arm, decentralized, […]

#EnoughIsEnough

For several years, we have been working ‘behind the scenes’ supporting individual clinicians, allied health professionals and their teams to help improve NHS services for people with any type of Ehlers-Danlos syndrome (EDS) or hypermobility spectrum disorders (HSD). We have funded research and medical education events and we partnered with the Royal College of GPs and a highly committed […]

forum

The EDS UK forum is currently down for maintenance and we hope to have it up again soon.

Free copy Fragile Links – Summer 2024

Summer 2024

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Health coaching

Helen Bevan of Lifelong Coaching is offering a free one hour 1:1 coaching session to discuss a topic/issue that you would like to work on. In the session, she will work with you to get an outcome by the end of the conversation. As someone with hypermobile EDS (hEDS) and other chronic/invisible illnesses Helen is […]

How you can help

However you would like to get involved with EDS UK – raising money in your community, taking part in an event, becoming a member, volunteering your time or donating – there is a part for you to play. Every contribution is hugely valuable, appreciated and helps make our invisible visible. Browse the links to find […]

How to support students Infographic

IDs of support groups and regions

Let us know about your fundraising

Please complete the form below to let us know about your fundraising event. After completing the form you can download a copy of our fundraising pack and we will be in touch to see how we can help you. If you have any questions please do not hesitate to contact fundraising@ehlers-danlos.org.

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