SearchPersonal stories about 'Fundraising'
The Ehlers-Danlos Support UK relies on the fundraising efforts of 100’s people every year to be able support 1000’s of people throughout the UK touched by The Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorder (HSD). Below are a collection of stories from some of our fantastic fundraisers.
12th July 2022
My STOMA is called Jupiter
My adult life had been a battle with a variety of issues and I had no way of knowing that the gastrointestinal issues I had experienced from my teens would be unexplained for 40 years. Despite a diagnosis of coeliac disease, the medical world had been unable to join-up the causes of my symptoms. I […]
14th July 2021
A condition close to my heart
Arun's talks about the motivations behind her fantastic fundraising and how EDS has touched her family