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    • What is EDS?
      • Types of EDS
        • Hypermobile EDS and hypermobility spectrum disorders
        • Classical EDS
        • Vascular EDS
        • All types
      • Diagnosis
        • How to get assessed for hEDS or HSD
        • Genetic testing for rare types of EDS
        • …more on diagnosis
      • Living with EDS
        • Physiotherapy and self-management
        • Pain
        • Fatigue
        • Surgery
        • Self management
      • Conditions linked to EDS
        • Brain and spine
        • Digestive disorders
        • Postural tachycardia syndrome (PoTS)
        • …more conditions linked to EDS
      • Children
        • Pregnancy
        • Your child and the Ehlers-Danlos syndromes
        • Gastrointestinal problems in children with Ehlers-Danlos syndrome
        • …more on children
      • Healthcare professionals
        • Physical therapy for hypermobility
        • A midwife’s guide to pregnancy, birth, feeding and EDS
        • …more for healthcare professionals
      • Awareness presentations
        • General what is EDS presentation
        • What is EDS for primary schools
        • What is EDS for secondary schools
      • Stories
        • Education
        • Fundraising
        • Management
        • Mental Health
        • Physiotherapy
        • Pain
        • Work
      • Webinars
        • Webinar player
      • FAQ’s
        • Frequently asked questions about EDS and HSD
    • Support
      • Support volunteers
        • Men’s Coordinator
        • Parents’ Coordinator – Mel
        • Elders’ Coordinator – Caz
      • Benefits and disabilities
        • Blue badges
        • Employment advice
        • Guides to help with benefits claims
        • Information on disability
      • Support Groups
        • Central and Greater London
        • East Midlands
        • East of England
        • Kent
        • … more regions
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        • Contact our adviceline
    • How you can help
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        • In your community
          • May awareness month
          • Collection boxes
          • Recycle your used stamps
          • E-cards
        • Take part in a fundraising event
          • Running & walking events
          • Cycling events
          • Adrenaline events
        • Virtual fundraising
      • Volunteer your time
        • Become an Area Coordinator
        • Become a Fundraising Volunteer
        • Other types of volunteering
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        • Strata Miniatures
        • UK Railtours
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    Personal stories about 'Rarer types of EDS'

    14th January 2026

    My Story with Classical EDS (cEDS) – Rosanna

    When I was a small child, I suffered a lot of dislocations, and I was always falling down. But as no one had heard of EDS in the 1950’s, I was just classed as clumsy.

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    Explore personal story categories
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    The Ehlers-Danlos Support UK

    International House

    66 Lavender Hill

    London

    SW11 5RQ

    T: 0800 246 1391

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    © Copyright 2017 The Ehlers-Danlos Support UK

    Registered Address: International House, 66 Lavender Hill, London, SW11 5RQ
    The Ehlers-Danlos Support UK is a Charity registered in England and Wales (1157027) and Scotland (SC046712)
    Registered Company No. 8924646.

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