Our vision and focus

Our vision is that nobody should be left to fight on their own. Every person with EDS should have access to the appropriate medical services and care.

We work to improve the quality of life for people living with EDS, raising awareness and providing support as part of a growing community.

We have four areas of focus guiding all of our work:

  • Education and awareness
  • Support for those affected by EDS
  • Better knowledge through research
  • Organisational capability – making sure we are a high performing, sustainable organisation

While our focus is EDS, we welcome anyone whose symptoms cross over with it who can be helped by what we do.