SearchPersonal stories about 'Education'
Every person deserves an education but for many people with EDS or HSD getting access to the right support is difficult and sometimes impossible. A person with EDS or HSD may need reasonable adjustments in order for them to reach their potential and we have created a free School Toolkit to provide school staff with information about symptomatic hypermobility and the Ehlers-Danlos syndromes (EDS) and how they may affect primary and secondary pupils at school
15th March 2025
Be Patient – My EDS Story by Tilly Rose
‘In 1940, medical researcher Theodore Woodward coined the phrase, ‘When you hear hoof beats, think of horses, not zebras.’ The odds are that patients have common diagnoses rather than rare ones. On day one, I got Theodore Woodward’s vibe; but 11 years down the line, he’s totally screwed me over. I am now facing […]
14th July 2021
My story – there is hope
Leonah's story about how her EDS led to her lowest point and how her diagnosis and succeeding in education has led to a brighter and happier future