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  • What is EDS?
    • Types of EDS
      • Hypermobile EDS and hypermobility spectrum disorders
      • Classical EDS
      • Vascular EDS
      • All types
    • Diagnosis
      • How to get assessed for hEDS or HSD
      • How to get assessed for a rare type of EDS
      • Genetic counselling for the Ehlers-Danlos syndromes
      • …more on diagnosis
    • Living with EDS
      • Physiotherapy and self-management
      • Pain
      • Fatigue
      • Surgery
      • Self management
    • Conditions linked to EDS
      • Brain and spine
      • Digestive disorders
      • Postural tachycardia syndrome (PoTS)
      • …more conditions linked to EDS
    • Children
      • Pregnancy
      • Your child and the Ehlers-Danlos syndromes
      • Gastrointestinal problems in children with Ehlers-Danlos syndrome
      • …more on children
    • Healthcare professionals
      • Physical therapy for hypermobility
      • A midwife’s guide to pregnancy, birth, feeding and EDS
      • …more for healthcare professionals
    • Awareness presentations
      • General what is EDS presentation
      • What is EDS for primary schools
      • What is EDS for secondary schools
  • Support
    • Support volunteers
      • Men’s Coordinators
      • Parents’ Coordinator – Sarah Griffin
      • Partners’ Coordinator – Matt Hillman
      • Elders’ Coordinator – Angela Hunter
    • Benefits and disabilities
      • Blue badges
      • Employment advice
      • Guides to help with benefits claims
      • Information on disability
    • Support Groups
      • Central and Greater London
      • East Midlands
      • East of England
      • Kent
      • … more regions
    • Child protection and EDS
      • Parents accused
      • Parent protecting children
  • How you can help
    • Make a donation
      • Donate today
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      • Donate in memory
    • Raise money
      • In your community
        • Virtual fundraising
        • 2020 May Awareness Month
        • Collection boxes
        • Recycle your used stamps
        • E-cards
      • Take part in an event
        • Running & walking events
        • Cycling events
        • Adrenaline events
        • Virtual fundraising
    • Volunteer your time
      • Become an Area Coordinator
      • Become a Fundraising Volunteer
      • Other types of volunteering
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      • Join today
    • Become a partner
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  • News and events
  • Research
  • About us
    • Our vision and focus
      • Our values
      • Our research position
      • Why the zebra?
      • Our patron
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    • Contact us
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      • Complaints policy
      • Delivery and returns
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      • Privacy policy
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    • What is EDS?
      • Types of EDS
        • Hypermobile EDS and hypermobility spectrum disorders
        • Classical EDS
        • Vascular EDS
        • All types
      • Diagnosis
        • How to get assessed for hEDS or HSD
        • How to get assessed for a rare type of EDS
        • Genetic counselling for the Ehlers-Danlos syndromes
        • …more on diagnosis
      • Living with EDS
        • Physiotherapy and self-management
        • Pain
        • Fatigue
        • Surgery
        • Self management
      • Conditions linked to EDS
        • Brain and spine
        • Digestive disorders
        • Postural tachycardia syndrome (PoTS)
        • …more conditions linked to EDS
      • Children
        • Pregnancy
        • Your child and the Ehlers-Danlos syndromes
        • Gastrointestinal problems in children with Ehlers-Danlos syndrome
        • …more on children
      • Healthcare professionals
        • Physical therapy for hypermobility
        • A midwife’s guide to pregnancy, birth, feeding and EDS
        • …more for healthcare professionals
      • Awareness presentations
        • General what is EDS presentation
        • What is EDS for primary schools
        • What is EDS for secondary schools
    • Support
      • Support volunteers
        • Men’s Coordinators
        • Parents’ Coordinator – Sarah Griffin
        • Partners’ Coordinator – Matt Hillman
        • Elders’ Coordinator – Angela Hunter
      • Benefits and disabilities
        • Blue badges
        • Employment advice
        • Guides to help with benefits claims
        • Information on disability
      • Support Groups
        • Central and Greater London
        • East Midlands
        • East of England
        • Kent
        • … more regions
      • Child protection and EDS
        • Parents accused
        • Parent protecting children
    • How you can help
      • Make a donation
        • Donate today
          • Single donation
          • Monthly donation
        • Leave a lasting legacy
        • Donate in memory
      • Raise money
        • In your community
          • Virtual fundraising
          • 2020 May Awareness Month
          • Collection boxes
          • Recycle your used stamps
          • E-cards
        • Take part in an event
          • Running & walking events
          • Cycling events
          • Adrenaline events
          • Virtual fundraising
      • Volunteer your time
        • Become an Area Coordinator
        • Become a Fundraising Volunteer
        • Other types of volunteering
      • Become a member
        • Join today
      • Become a partner
        • Clobber Clothes
    • News and events
    • Research
    • About us
      • Our vision and focus
        • Our values
        • Our research position
        • Why the zebra?
        • Our patron
        • The Information Standard
      • Contact us
        • Staff team
        • Trustees
        • Medical Advisory Panel
        • Vacancies
        • Send us a message
      • Policies
        • Complaints policy
        • Delivery and returns
        • Membership policy
        • Privacy policy
        • Terms and conditions
    • Shop
    • Membership Account

    How you can help

    However you would like to get involved with EDS UK – raising money in your community, taking part in an event, becoming a member, volunteering your time or donating – there is a part for you to play. Every contribution is hugely valuable, appreciated and helps make our invisible visible.

    Browse the links to find out more and start your journey with EDS UK.

    • Make a donation

      Ehlers-Danlos Support UK is a charity and relies on voluntary donations to continue our work. Thank you for choosing to make  donation to support people affected by EDS. Your generosity will enable us to make our invisible, visible. If you have any questions about making a donation please call us on 020 8736 5604 or […]

    • Raise money in your community

      Are you full of energy? Do you want to inspire others in your area? Are you committed to supporting people affected by EDS? If the answer to any of these is yes, we need your help. Your local community is full of businesses, rotary societies, schools, faith groups, golf clubs and many more, looking for […]

    • Take part in an event

      Get Fitter. Be Faster. Go Further. Challenge yourself by taking on one of our many fundraising events and raise money to help support those touched by EDS. Please browse our selection of events and do not hesitate to contact fundraising@ehlers-danlos.org should you have any queries. This is only a small selection of the events we have […]

    • Volunteer your time

      By volunteering with us, you could make a real difference to someone affected by EDS. Our volunteers do amazing things and we couldn’t do what we do without them. Volunteering is a great way to meet new people, learn new skills and feel part of something worthwhile. Have a look at our volunteering opportunities and […]

    • Make a donation

      Ehlers-Danlos Support UK is a charity and relies on voluntary donations to continue our work. Thank you for choosing to make  donation to support people affected by EDS. Your generosity will enable us to make our invisible, visible. If you have any questions about making a donation please call us on 020 8736 5604 or […]

    • Raise money in your community

      Are you full of energy? Do you want to inspire others in your area? Are you committed to supporting people affected by EDS? If the answer to any of these is yes, we need your help. Your local community is full of businesses, rotary societies, schools, faith groups, golf clubs and many more, looking for […]

    • Take part in an event

      Get Fitter. Be Faster. Go Further. Challenge yourself by taking on one of our many fundraising events and raise money to help support those touched by EDS. Please browse our selection of events and do not hesitate to contact fundraising@ehlers-danlos.org should you have any queries. This is only a small selection of the events we have […]

    • Volunteer your time

      By volunteering with us, you could make a real difference to someone affected by EDS. Our volunteers do amazing things and we couldn’t do what we do without them. Volunteering is a great way to meet new people, learn new skills and feel part of something worthwhile. Have a look at our volunteering opportunities and […]

    How can we help?

    • I need support
    • Where is my nearest support group?
    • I need information on EDS
    • How to I become a member?
    • How can I support you?
    • How can I receive your magazine?

    Keep in touch

    Subscribe to our magazine
    Become a member

    Contact us

    The Ehlers-Danlos Support UK

    Devonshire House

    Manor Way

    Borehamwood

    WD6 1QQ

    T: 0208 736 5604

    Helpline: 0800 9078518

    Send us a message
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    © Copyright 2017 The Ehlers-Danlos Support UK

    Registered Address: Devonshire House, Manor Way, Borehamwood, Hertfordshire WD6 1QQ
    The Ehlers-Danlos Support UK is a Charity registered in England and Wales (1157027) and Scotland (SC046712)
    Registered Company No. 8924646.