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  • What is EDS?
    • Types of EDS
      • Hypermobile EDS and hypermobility spectrum disorders
      • Classical EDS
      • Vascular EDS
      • All types
    • Diagnosis
      • How to get assessed for hEDS or HSD
      • Genetic testing for rare types of EDS
      • …more on diagnosis
    • Living with EDS
      • Physiotherapy and self-management
      • Pain
      • Fatigue
      • Surgery
      • Self management
    • Conditions linked to EDS
      • Brain and spine
      • Digestive disorders
      • Postural tachycardia syndrome (PoTS)
      • …more conditions linked to EDS
    • Children
      • Pregnancy
      • Your child and the Ehlers-Danlos syndromes
      • Gastrointestinal problems in children with Ehlers-Danlos syndrome
      • …more on children
    • Healthcare professionals
      • Physical therapy for hypermobility
      • A midwife’s guide to pregnancy, birth, feeding and EDS
      • …more for healthcare professionals
    • Awareness presentations
      • General what is EDS presentation
      • What is EDS for primary schools
      • What is EDS for secondary schools
    • Stories
      • Education
      • Fundraising
      • Management
      • Mental Health
      • Physiotherapy
      • Pain
      • Work
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      • Webinar player
    • FAQ’s
      • Frequently asked questions about EDS and HSD
  • Support
    • Support volunteers
      • Men’s Coordinator
      • Parents’ Coordinator – Mel
      • Elders’ Coordinator – Caz
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      • Information on disability
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      • … more regions
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      • Parent protecting children
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      • Contact our adviceline
  • How you can help
    • Make a donation
      • Donate today
      • Leave a lasting legacy
      • Give in memory
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      • In your community
        • May awareness month
        • Collection boxes
        • Recycle your used stamps
        • E-cards
      • Take part in a fundraising event
        • Running & walking events
        • Cycling events
        • Adrenaline events
      • Virtual fundraising
    • Volunteer your time
      • Become an Area Coordinator
      • Become a Fundraising Volunteer
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      • Why the zebra?
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    • What is EDS?
      • Types of EDS
        • Hypermobile EDS and hypermobility spectrum disorders
        • Classical EDS
        • Vascular EDS
        • All types
      • Diagnosis
        • How to get assessed for hEDS or HSD
        • Genetic testing for rare types of EDS
        • …more on diagnosis
      • Living with EDS
        • Physiotherapy and self-management
        • Pain
        • Fatigue
        • Surgery
        • Self management
      • Conditions linked to EDS
        • Brain and spine
        • Digestive disorders
        • Postural tachycardia syndrome (PoTS)
        • …more conditions linked to EDS
      • Children
        • Pregnancy
        • Your child and the Ehlers-Danlos syndromes
        • Gastrointestinal problems in children with Ehlers-Danlos syndrome
        • …more on children
      • Healthcare professionals
        • Physical therapy for hypermobility
        • A midwife’s guide to pregnancy, birth, feeding and EDS
        • …more for healthcare professionals
      • Awareness presentations
        • General what is EDS presentation
        • What is EDS for primary schools
        • What is EDS for secondary schools
      • Stories
        • Education
        • Fundraising
        • Management
        • Mental Health
        • Physiotherapy
        • Pain
        • Work
      • Webinars
        • Webinar player
      • FAQ’s
        • Frequently asked questions about EDS and HSD
    • Support
      • Support volunteers
        • Men’s Coordinator
        • Parents’ Coordinator – Mel
        • Elders’ Coordinator – Caz
      • Benefits and disabilities
        • Blue badges
        • Employment advice
        • Guides to help with benefits claims
        • Information on disability
      • Support Groups
        • Central and Greater London
        • East Midlands
        • East of England
        • Kent
        • … more regions
      • Child protection and EDS
        • Parents accused
        • Parent protecting children
      • Adviceline
        • Contact our adviceline
    • How you can help
      • Make a donation
        • Donate today
        • Leave a lasting legacy
        • Give in memory
      • Raise money
        • In your community
          • May awareness month
          • Collection boxes
          • Recycle your used stamps
          • E-cards
        • Take part in a fundraising event
          • Running & walking events
          • Cycling events
          • Adrenaline events
        • Virtual fundraising
      • Volunteer your time
        • Become an Area Coordinator
        • Become a Fundraising Volunteer
        • Other types of volunteering
      • Become a member
        • Join today
      • Become a partner
        • Green people
        • Strata Miniatures
        • UK Railtours
    • News
    • Research
    • Professionals
      • Toolkits for professionals
        • Toolkit for GPs
        • Toolkit for schools
    • About
      • Our vision and mission and theory of change
        • Our values
        • Our research position
        • Why the zebra?
        • Ambassadors
        • Our patron
        • The Information Standard
        • EDS UK Community Champion Awards
      • Contact us
        • Staff team
        • Trustees
        • Medical Advisory Panel
        • Vacancies
        • Send us a message
      • Policies
        • Complaints policy
        • Delivery and returns
        • Membership policy
        • Privacy policy
        • Fundraising policy and ethical framework
        • Terms and conditions
    • Campaigns
      • #EnoughIsEnough
    • Shop
    • Membership Account
      • Your Profile

    How you can help

    However you would like to get involved with EDS UK – raising money in your community, taking part in an event, becoming a member, volunteering your time or donating – there is a part for you to play. Every contribution is hugely valuable, appreciated and helps make our invisible visible.

    Browse the links to find out more and start your journey with EDS UK.

    • Make a donation

      Ehlers-Danlos Support UK is a charity and relies on voluntary donations to continue our work. Thank you for choosing to make  donation to support people affected by EDS. Your generosity will enable us to make our invisible, visible. If you have any questions about making a donation please call us on 020 8736 5604 or […]

    • Raise money in your community

      Are you full of energy? Do you want to inspire others in your area? Are you committed to supporting people affected by EDS? If the answer to any of these is yes, we need your help. Your local community is full of businesses, rotary societies, schools, faith groups, golf clubs and many more, looking for […]

    • Take part in a fundraising event

      Get Fitter. Be Faster. Go Further. Challenge yourself by taking on one of our many fundraising events and raise money to help support those touched by EDS and HSD. Please browse our selection of events and do not hesitate to contact fundraising@ehlers-danlos.org or 07947 775781 should you have any queries. Once you have secured your place […]

    • Virtual fundraising

      Virtual fundraising provides so many opportunities – our amazing supporters are always coming up with new and innovative ways to raise money. Virtual fundraisers also have the added bonus of letting you catch up with family and friends whilst raising money to help people with EDS and HSD. Take a look at the ideas below […]

    • Volunteer your time

      By volunteering with us, you could make a real difference to someone affected by EDS. Our volunteers do amazing things and we couldn’t do what we do without them. Volunteering is a great way to meet new people, learn new skills and feel part of something worthwhile. Have a look at our volunteering opportunities and […]

    • Make a donation

      Ehlers-Danlos Support UK is a charity and relies on voluntary donations to continue our work. Thank you for choosing to make  donation to support people affected by EDS. Your generosity will enable us to make our invisible, visible. If you have any questions about making a donation please call us on 020 8736 5604 or […]

    • Raise money in your community

      Are you full of energy? Do you want to inspire others in your area? Are you committed to supporting people affected by EDS? If the answer to any of these is yes, we need your help. Your local community is full of businesses, rotary societies, schools, faith groups, golf clubs and many more, looking for […]

    • Take part in a fundraising event

      Get Fitter. Be Faster. Go Further. Challenge yourself by taking on one of our many fundraising events and raise money to help support those touched by EDS and HSD. Please browse our selection of events and do not hesitate to contact fundraising@ehlers-danlos.org or 07947 775781 should you have any queries. Once you have secured your place […]

    • Virtual fundraising

      Virtual fundraising provides so many opportunities – our amazing supporters are always coming up with new and innovative ways to raise money. Virtual fundraisers also have the added bonus of letting you catch up with family and friends whilst raising money to help people with EDS and HSD. Take a look at the ideas below […]

    • Volunteer your time

      By volunteering with us, you could make a real difference to someone affected by EDS. Our volunteers do amazing things and we couldn’t do what we do without them. Volunteering is a great way to meet new people, learn new skills and feel part of something worthwhile. Have a look at our volunteering opportunities and […]

    How can we help?

    • I need support
    • Where is my nearest support group?
    • I need information on EDS
    • How to I become a member?
    • How can I support you?
    • How can I receive your magazine?

    Keep in touch

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    Become a member

    Contact us

    The Ehlers-Danlos Support UK

    International House

    66 Lavender Hill

    London

    SW11 5RQ

    T: 0800 246 1391

    Adviceline: 0800 907 8518

    Send us a message
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    © Copyright 2017 The Ehlers-Danlos Support UK

    Registered Address: International House, 66 Lavender Hill, London, SW11 5RQ
    The Ehlers-Danlos Support UK is a Charity registered in England and Wales (1157027) and Scotland (SC046712)
    Registered Company No. 8924646.

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