Postural tachycardia syndrome (PoTS)

Malfunctioning of the part of the nervous system that controls involuntary bodily functions (e.g. breathing, heart rate) is common with hypermobile EDS. Symptoms include fast heart rate coupled with low blood pressure, digestive and bladder problems, and temperature and sweating dysregulation. You can manage the condition by drinking more fluids, improving your cardiovascular fitness, and if your daily function is severely impaired, taking medication.

Autonomic dysfunction

Author
Dr Alan Hakim, Consultant Rheumatologist & Professor Rodney Grahame, Consultant Rheumatologist, The Hypermobility Unit, Hospital of St John and St Elizabeth, London

Summary

An overview of postural tachycardia syndrome (PoTS), an abnormality in the way the involuntary part of the nervous system functions - its symptoms, the diagnostic tests available and your treatment options.

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Video: The postural tachycardia syndrome – PoTS and progress

Presenter
Professor Christopher Mathias, Professor of Neurovascular Medicine, UCL Institute of Neurology, London

Summary

Our current understanding of PoTS, a dysfunction of the autonomic (involuntary) nervous system.

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Video: Autonomic issues and EDS

Presenter
Dr David Low, Clinical Research Lead, Autonomic and Neurovascular Medicine Unit, Imperial College London

Summary

An overview of autonomic dysfunction and postural tachycardia syndrome (PoTS) in EDS.

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Teens and autonomic dysfunction

Author
Mayo Clinic

Summary

This booklet produced by the Mayo Clinic is aimed at teenagers but useful for anyone suffering with autonomic dysfunction. It explains what postural tachycardia syndrome is and gives tips on how you can feel better.
For more information surrounding this booklet contact Mayo Clinic http://www.mayoclinic.org/

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Link to PoTS UK

Summary

PoTS UK is a registered charity which supports and educates people with postural tachycardia syndrome and medical professionals about this little-known, debilitating condition.

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Link to STARS

Summary

The charity STARS (Syncope Trust And Reflex anoxic Seizures) supports anyone with unexplained loss of consciousness, helping them to receive the correct diagnosis and appropriate care.

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What is EDS?

Information sheets, how to get a diagnosis, advice for medical profesisonals......