Donate Membership Subscribe
Search Freephone helpline: 0800 907 8518 Shopping Cart
  • What is EDS?
    • Types of EDS
      • Hypermobile EDS and hypermobility spectrum disorders
      • Classical EDS
      • Vascular EDS
      • All types
    • Diagnosis
      • How to get assessed for hEDS or HSD
      • How to get assessed for a rare type of EDS
      • Genetic counselling for the Ehlers-Danlos syndromes
      • …more on diagnosis
    • Living with EDS
      • Physiotherapy and self-management
      • Pain
      • Fatigue
      • Surgery
      • Self management
    • Conditions linked to EDS
      • Brain and spine
      • Digestive disorders
      • Postural tachycardia syndrome (PoTS)
      • …more conditions linked to EDS
    • Children
      • Pregnancy
      • Your child and the Ehlers-Danlos syndromes
      • Gastrointestinal problems in children with Ehlers-Danlos syndrome
      • …more on children
    • Healthcare professionals
      • Physical therapy for hypermobility
      • A midwife’s guide to pregnancy, birth, feeding and EDS
      • …more for healthcare professionals
    • Awareness presentations
      • General what is EDS presentation
      • What is EDS for primary schools
      • What is EDS for secondary schools
    • Patient Stories
      • Mental Health
      • Physiotherapy
      • Pain awareness month
  • Support
    • Support volunteers
      • Men’s Coordinators
      • Parents’ Coordinator – Sarah Griffin
      • Partners’ Coordinator – Matt Hillman
      • Elders’ Coordinator – Angela Hunter
    • Benefits and disabilities
      • Blue badges
      • Employment advice
      • Guides to help with benefits claims
      • Information on disability
    • Support Groups
      • Central and Greater London
      • East Midlands
      • East of England
      • Kent
      • … more regions
    • Child protection and EDS
      • Parents accused
      • Parent protecting children
  • How you can help
    • Make a donation
      • Donate today
        • Single donation
        • Monthly donation
      • Leave a lasting legacy
      • Donate in memory
    • Raise money
      • In your community
        • 2020 May Awareness Month
        • Collection boxes
        • Recycle your used stamps
        • E-cards
      • Take part in an event
        • Running & walking events
        • Cycling events
        • Adrenaline events
      • Virtual fundraising
        • EDSUK Great British Bake In!
        • Game on!
    • Volunteer your time
      • Become an Area Coordinator
      • Become a Fundraising Volunteer
      • Other types of volunteering
    • Become a member
      • Join today
    • Become a partner
      • Just About Group
      • Strata Miniatures
  • News and events
  • Research
  • About us
    • Our vision and focus
      • Our values
      • Our research position
      • Why the zebra?
      • Our patron
      • The Information Standard
    • Contact us
      • Staff team
      • Trustees
      • Medical Advisory Panel
      • Vacancies
      • Send us a message
    • Policies
      • Complaints policy
      • Delivery and returns
      • Membership policy
      • Privacy policy
      • Terms and conditions
  • Shop
  • Membership Account
  • Login/register
    • What is EDS?
      • Types of EDS
        • Hypermobile EDS and hypermobility spectrum disorders
        • Classical EDS
        • Vascular EDS
        • All types
      • Diagnosis
        • How to get assessed for hEDS or HSD
        • How to get assessed for a rare type of EDS
        • Genetic counselling for the Ehlers-Danlos syndromes
        • …more on diagnosis
      • Living with EDS
        • Physiotherapy and self-management
        • Pain
        • Fatigue
        • Surgery
        • Self management
      • Conditions linked to EDS
        • Brain and spine
        • Digestive disorders
        • Postural tachycardia syndrome (PoTS)
        • …more conditions linked to EDS
      • Children
        • Pregnancy
        • Your child and the Ehlers-Danlos syndromes
        • Gastrointestinal problems in children with Ehlers-Danlos syndrome
        • …more on children
      • Healthcare professionals
        • Physical therapy for hypermobility
        • A midwife’s guide to pregnancy, birth, feeding and EDS
        • …more for healthcare professionals
      • Awareness presentations
        • General what is EDS presentation
        • What is EDS for primary schools
        • What is EDS for secondary schools
      • Patient Stories
        • Mental Health
        • Physiotherapy
        • Pain awareness month
    • Support
      • Support volunteers
        • Men’s Coordinators
        • Parents’ Coordinator – Sarah Griffin
        • Partners’ Coordinator – Matt Hillman
        • Elders’ Coordinator – Angela Hunter
      • Benefits and disabilities
        • Blue badges
        • Employment advice
        • Guides to help with benefits claims
        • Information on disability
      • Support Groups
        • Central and Greater London
        • East Midlands
        • East of England
        • Kent
        • … more regions
      • Child protection and EDS
        • Parents accused
        • Parent protecting children
    • How you can help
      • Make a donation
        • Donate today
          • Single donation
          • Monthly donation
        • Leave a lasting legacy
        • Donate in memory
      • Raise money
        • In your community
          • 2020 May Awareness Month
          • Collection boxes
          • Recycle your used stamps
          • E-cards
        • Take part in an event
          • Running & walking events
          • Cycling events
          • Adrenaline events
        • Virtual fundraising
          • EDSUK Great British Bake In!
          • Game on!
      • Volunteer your time
        • Become an Area Coordinator
        • Become a Fundraising Volunteer
        • Other types of volunteering
      • Become a member
        • Join today
      • Become a partner
        • Just About Group
        • Strata Miniatures
    • News and events
    • Research
    • About us
      • Our vision and focus
        • Our values
        • Our research position
        • Why the zebra?
        • Our patron
        • The Information Standard
      • Contact us
        • Staff team
        • Trustees
        • Medical Advisory Panel
        • Vacancies
        • Send us a message
      • Policies
        • Complaints policy
        • Delivery and returns
        • Membership policy
        • Privacy policy
        • Terms and conditions
    • Shop
    • Membership Account

    Personal stories about 'Mental Health'

    Thursday 4th February is Time To Talk Day, a day that aims to bring the nation together to get talking and break the silence around mental health problems. To encourage people to talk, share their experiences and gain strength from others. Patients with chronic health conditions like EDS and HSD can often experience mental health issues. The following stories were filmed during lockdown for Time To Talk Day.

    3rd February 2021

    #TimeToTalk – Melanie

    Lisa, our brilliant Black Country and South Staffordshire. Like so many other EDS patients, Melanie has had years of medical professional telling her that the condition is all in her head.

    3rd February 2021

    #TimeToTalk – Lisa

    Lisa, our amazing West Yorkshire area coordinator, talks about her struggles with mental health, including suicide, paranoia, anxiety and OCD. Lisa is a caring, bubbly and loving person and this film is a wonderful example of the mask that many people put on to hide what they are going through.

    3rd February 2021

    #TimeToTalk – Grainne

    Grainne, our wonderful Suffolk Area Coordinator, talks honestly and openly about her mental health. Amongst other things she discusses how her sexuality, medication and relationships affected her mental health.

    • Explore personal stories
    • Pain awareness month

    • Physiotherapy

    • Pain awareness month

    • Physiotherapy

    How can we help?

    • I need support
    • Where is my nearest support group?
    • I need information on EDS
    • How to I become a member?
    • How can I support you?
    • How can I receive your magazine?

    Keep in touch

    Subscribe to our magazine
    Become a member

    Contact us

    The Ehlers-Danlos Support UK

    Devonshire House

    Manor Way

    Borehamwood

    WD6 1QQ

    T: 0208 736 5604

    Helpline: 0800 9078518

    Send us a message
    • Delivery & returns
    • Membership policy
    • Privacy policy
    • Complaints policy
    • Terms & conditions
    helplines_partnership_logo fundraising_regulator_logo lottery_funded_logo disability_confident_logo

    © Copyright 2017 The Ehlers-Danlos Support UK

    Registered Address: Devonshire House, Manor Way, Borehamwood, Hertfordshire WD6 1QQ
    The Ehlers-Danlos Support UK is a Charity registered in England and Wales (1157027) and Scotland (SC046712)
    Registered Company No. 8924646.