Support Groups

Did you know...all our support groups are run by Area Coordinators who volunteer their time to organise meetings all over the country. Our Area Coordinators are from all walks of life including some who suffer with EDS, to those who care for someone with it. Without our volunteers, the support we provide to you would cease to exist, so we are incredibly grateful for the invaluable work they do.

We have over 50 groups online and face to face, with the aim to provide safe, friendly environments where members can meet others, listen to people’s stories and learn from each other. All of our support groups also have a closed regional Facebook group for members only.

We are very grateful for a Big Lottery Fund grant through the National Lottery which helps pay for the meetings, training of our volunteers and much more.


There are currently no meetings in the diary for this support group. If you have selected to receive notifications on this support group we will notify you when one is organised. You can update what Support Groups you are notified about in your member profile.



Contact group

Hello everyone I would like to introduce myself as the Thanet Area Coordinator. I am 35 years old and I live in Broadstairs with my partner and my three children, 2 of whom have EDS.

I was diagnosed with EDS in 2011 after years of health problems, misdiagnosis and chronic pain. I am excited about meeting fellow sufferers and their families and enabling you all to have access to the advice and support that EDS UK has to offer. I would also like to organise meetings that enable members to gather information on EDS matters whilst meeting other EDS sufferers.

Looking forward to meeting you all soon!

Date: October 26, 2019

Start: 12:30 pm

Finish: 2:30 pm

Venue: Portland Centre, St Peter's Church, Hopeville Avenue, Broadstairs, CT10 2TR

Additional info: Our meeting will be in the Portland centre (one of the church halls) directly opposite co-op in Hopeville Avenue. There is an adjacent car park and disabled parking outside. We will have a guest speaker which is tbc once I have confirmation who will be attending.




Contact group

Hi everyone, I’m Lyndsey!

I am so excited to write this I almost don’t know where to begin!

So, EDS UK have asked me to write a little bit about ME!  So here goes, I am 38 and I was born in Greenwich South East London. My family are in and around South East London and Kent so I know the area well.

I have Hypermobile EDS, PoTS, full body Arthritis & a mutated Heamochromatosis gene. I deal with the varied challenges these conditions pose on a daily basis.  Through my continuing battle I have gained a lot of knowledge and feel I can share a lot with you all; I don’t believe anyone should face this alone.

In my wider life I have many interests, and perhaps one of my more unusual ones is that I keep turtles! I currently have 7 and my partner says I have enough now but time will tell!  I am approachable, fun (some may say funny!), I love to listen and am so excited to be working with EDS UK as the Area Coordinator for Kent.  Looking forward to chatting with and meeting as many of you as possible.

***Gentle Hugs***


Date: September 25, 2019

Start: 1:00 pm

Finish: 3:00 pm

Venue: Welling Library, Bellegrove Road, Welling, Bexley, DA16 3PA


More Support

Support groups, advice with work, help with benefits and more