Did you know...all our support groups are run by Area Coordinators who volunteer their time to organise meetings all over the country. Our Area Coordinators are from all walks of life including some who suffer with EDS, to those who care for someone with it. Without our volunteers, the support we provide to you would cease to exist, so we are incredibly grateful for the invaluable work they do.
We have over 50 groups, with the aim to provide safe, friendly environments where members can meet others, listen to people’s stories and learn from each other. All of our support groups also have a closed regional facebook group for members only.
We are very grateful for a Big Lottery Fund grant through the National Lottery which helps pay for the meetings, training of our volunteers and much more.
There are currently no meetings in the diary for this support group. If you have selected to receive notifications on this support group we will notify you when one is organised. You can update what Support Groups you are notified about in your member profile.
Date: September 30, 2017
Start: 1:00 pm
Finish: 3:00 pm
Venue: Brewers Fayre Promenade, Station Road, CT9 5AF Margate, Kent
Additional info: Please come along for a meet up and chat in Margate. Looking forward to meeting you all in a relaxed environment and hoping we can discuss what you would like to get from your future meetings with us. Please reply to invite where possible so we can ensure we have reserved a big enough area.
Date: October 14, 2017
Start: 11:00 am
Finish: 1:00 pm
Venue: Queens road baptist church, Broadstairs, CT10 1NU
Additional info: We will have a nurse coming along from Kent continence service to talk a bit about the service they offer and some bladder and bowel issues that may affect some of us. Please can you reply to the invite if you are coming or not so we can make sure we have enough chairs. The cafe within the church will be open to allow you to buy hot or cold drinks and the venue is wheelchair accessible. Parking is available outside for disabled badge holders or otherwise there is a car park just over the road. There is a bus stop right outside the venue from which buses stop from various areas of Thanet and beyond. Broadstairs train station is 10 minutes walk away from the venue. Please contact me if you have any questions regarding transport issues or anything else. Looking forward to meeting you all.
Hi everyone, I’m Lyndsey!
I am so excited to write this I almost don’t know where to begin!
So, EDS UK have asked me to write a little bit about ME! So here goes, I am 38 and I was born in Greenwich South East London. My family are in and around South East London and Kent so I know the area well.
I have Hypermobile EDS, PoTS, full body Arthritis & a mutated Heamochromatosis gene. I deal with the varied challenges these conditions pose on a daily basis. Through my continuing battle I have gained a lot of knowledge and feel I can share a lot with you all; I don’t believe anyone should face this alone.
In my wider life I have many interests, and perhaps one of my more unusual ones is that I keep turtles! I currently have 7 and my partner says I have enough now but time will tell! I am approachable, fun (some may say funny!), I love to listen and am so excited to be working with EDS UK as the Area Coordinator for Kent. Looking forward to chatting with and meeting as many of you as possible.
Date: November 21, 2017
Start: 1:00 pm
Finish: 3:00 pm
Venue: Welling Library, Bellegrove Road, Welling, Bexley, DA16 3PA
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Could you run support group meetings in....