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Membership Level change
You have selected the plus Fragile Links (UK delivery) membership level. FOR THOSE WHO PREFER A PAPER COPY OF A MAGAZINE POSTED TO YOUR DOOR: £13 per year (or you can pay £2 a month on standing order which includes an £11 donation) - PLEASE DO SIGN UP TO THIS LEVEL AS IT HELPS US TO CONTINUE PROVIDING SERVICES TO YOU. Access to management videos on the website Priority access to the Nourished© programme Access to Benefits and Work guides - support for applying for PIP, ESA, UC Access to local support groups (UK patients and families only) Access to regional closed Facebook Support Group pages (UK patients and families only) A weekly Enewsletter containing charity updates, management advice, fundraising ideas and the latest developments related to the condition Priority and discounted tickets to EDS UK conferences and events An annual subscription to our bi-annual magazine, Fragile Links Magazine. Containing articles on management advice written by expert medical professionals, charity news and patient stories. An annual subscription includes two editions (June and December 2026) Access to digital copies of previous editions online. Delivery to a United Kingdom postal address. The price for membership is £13.00 per Year. Membership expires after 1 Year.

Membership Level change

You have selected the plus Fragile Links (UK delivery) membership level.

FOR THOSE WHO PREFER A PAPER COPY OF A MAGAZINE POSTED TO YOUR DOOR: £13 per year (or you can pay £2 a month on standing order which includes an £11 donation) - PLEASE DO SIGN UP TO THIS LEVEL AS IT HELPS US TO CONTINUE PROVIDING SERVICES TO YOU.

Access to management videos on the website
Priority access to the Nourished© programme
Access to Benefits and Work guides - support for applying for PIP, ESA, UC
Access to local support groups (UK patients and families only)
Access to regional closed Facebook Support Group pages (UK patients and families only)
A weekly Enewsletter containing charity updates, management advice, fundraising ideas and the latest developments related to the condition
Priority and discounted tickets to EDS UK conferences and events
An annual subscription to our bi-annual magazine, Fragile Links Magazine. Containing articles on management advice written by expert medical professionals, charity news and patient stories. An annual subscription includes two editions (June and December 2026)
Access to digital copies of previous editions online. Delivery to a United Kingdom postal address.

The price for membership is £13.00 per Year.

Membership expires after 1 Year.

Account Information
Username Title Password Confirm Password First Name Last Name E-mail Address Confirm E-mail Address Address City County Post Code Country Phone Additional Information Reason for joining What type of EDS do you have? EDS UK volunteers run local Support Groups around the UK and closed regional facebook groups for patients and family/friends of people with EDS. You will choose a local group on joining but you are welcome to attend any support group. Please note you will need to choose a Support Group if you wish to join the regional Facebook groups. Please select your nearest support group Additional Suppport Groups Would you like to join our men's group (Facebook and support group meetings) for members who identify as male? Yes No Would you like to join our elder's group (Facebook and support group meetings) for our older members? Yes No Would you like to join our LGBTQ+ group (Facebook and support group meetings)? Yes No How would you like us to notify you about support group meetings. Our recommendation is by email only due postage and printing costs. Email only Post & email Do not notify me about meetings Which groups would you like to receive news & meeting notifications from? All support groups in my region Only my local support group Would you like to join the closed facebook group for your region? Yes No Your facebook profile If you are requesting to join any of our facebook groups, please enter you facebook name (the name shown under your profile picture)? What is your profession? (e.g.GP) Where is your place of work? Full Name LEAVE THIS BLANK

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EDS UK relies on donations to keep supporting people touched by the Ehlers-Danlos syndromes. Please consider adding a donation to your membership.

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By selecting any of the communication preferences below, you agree to The Ehlers-Danlos Support UK using your personal data in accordance with our Privacy Policy. Your personal information will only be used for the purpose or purposes you have selected below. This is not obligatory and you may opt out at any time. To unsubscribe from our newsletter you can do so by selecting the unsubscribe option on the newsletter and for all other prefences through your account page on this website.

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Membership policy
1.0 Membership schemes and benefits The Ehlers-Danlos Support UK (EDS UK) has two membership schemes available to anybody aged 18 or over touched by EDS (free membership and plus Fragile Links). The benefits of each scheme are outlined on the membership section of the website. EDS UK reserves the right to amend or cancel any benefits of each scheme and will notify members in advance of doing so. By becoming a member of EDS UK you are only entitled to the benefits outlined on the website. Whilst we recognise the importance of the voice of our members in the work we do and have mechanisms in place to seek members' opinions on a variety of topics, a member has no right to vote on decisions around how the charity operates. EDS UK reserves the right to cancel a membership at any time for reasons including but not limited to: Bullying of other members Bringing the charity into disrepute Abusing members of staff or volunteers of EDS UK Acts of fraud against the charity or other organisations connected to the charity 2.0 Cancellation of membership You have the right to cancel your membership at any time. To cancel free membership, you can do so in the membership account section of the website. To cancel plus Fragile Links membership, please contact the office on info@ehlers-danlos.org or 0208 736 5604. On cancelling you are entitled to a refund depending on how many issues of Fragile Links you have received: No issues: 100% 1 issue: 50% 2 issues: no refund If you wish to cancel your membership because you are unhappy with the quality of the service provided or you think we falsely advertised the benefits, please contact the office on info@ehlers-danlos.org or 0208 736 5604. 3.0 Renewing your membership You can renew free EDS UK and plus Fragile Links membership through the website or by contacting the office on info@ehlers-danlos.org or 0208 736 5604. If you do not renew a plus Fragile Links membership it will automatically change to free EDS UK membership once it expires. v.1.1 January 2021: The Ehlers-Danlos Support UK, Devonshire House, Manor Way, Borehamwood, WD6 1QQ I agree to the Membership policy

Membership policy

1.0 Membership schemes and benefits

The Ehlers-Danlos Support UK (EDS UK) has two membership schemes available to anybody aged 18 or over touched by EDS (free membership and plus Fragile Links). The benefits of each scheme are outlined on the membership section of the website. EDS UK reserves the right to amend or cancel any benefits of each scheme and will notify members in advance of doing so.

By becoming a member of EDS UK you are only entitled to the benefits outlined on the website. Whilst we recognise the importance of the voice of our members in the work we do and have mechanisms in place to seek members' opinions on a variety of topics, a member has no right to vote on decisions around how the charity operates.

EDS UK reserves the right to cancel a membership at any time for reasons including but not limited to:

Bullying of other members
Bringing the charity into disrepute
Abusing members of staff or volunteers of EDS UK
Acts of fraud against the charity or other organisations connected to the charity

2.0 Cancellation of membership

You have the right to cancel your membership at any time.

To cancel free membership, you can do so in the membership account section of the website.

To cancel plus Fragile Links membership, please contact the office on info@ehlers-danlos.org or 0208 736 5604. On cancelling you are entitled to a refund depending on how many issues of Fragile Links you have received:

No issues: 100%

1 issue: 50%

2 issues: no refund

If you wish to cancel your membership because you are unhappy with the quality of the service provided or you think we falsely advertised the benefits, please contact the office on info@ehlers-danlos.org or 0208 736 5604.

3.0 Renewing your membership

You can renew free EDS UK and plus Fragile Links membership through the website or by contacting the office on info@ehlers-danlos.org or 0208 736 5604. If you do not renew a plus Fragile Links membership it will automatically change to free EDS UK membership once it expires.

v.1.1 January 2021: The Ehlers-Danlos Support UK, Devonshire House, Manor Way, Borehamwood, WD6 1QQ

I agree to the Membership policy

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