SearchCommunity Champions
28 March, 2023
Jane Simmonds wins an EDS UK Community Champion Award
We are absolutely delighted to give Dr Jane Simmonds a Community Champion Award. Jane has supported both the charity and our community for many years, making her a most worthy winner. Jane is a specialist musculoskeletal and exercise rehabilitation physiotherapist with over 20 years of clinical experience, and leads the Physiotherapy provision in the Hypermobility Unit. […]
6 February, 2023
Anna Higo is our first Community Champion of 2023
Anna completed her BSc (Hons) in Physiotherapy at the University of Liverpool and became a Chartered Physiotherapist in 1997. Her specialist areas are the shoulder, spinal care, hyper mobility and Ehlers Danlos Syndrome. She become involved with HSD and hEDS after suffering with a poorly understood illness herself during pregnancy. This gave 9 months of […]
16 March, 2022
Mobilates are 2022 Community Champions
Mobilates was set up in 2019 by Leanne, a former volunteer for EDS UK! Leanne found Pilates after being diagnosed with EDS in 2016 and she was struggling to find a way to prevent her body from deconditioning. Leanne trained herself and set up Mobilates with a specific emphasis on supporting people with EDS to […]
1 March, 2022
Annabelle’s Challenge are Community Champions
Annabelle’s Challenge was founded in 2012 by Jared and Sarah Griffin after their daughter Annabelle was diagnosed with vascular Ehlers-Danlos syndrome at the age of 3. Vascular EDS (vEDS) is a rare type of the Ehlers-Danlos syndromes which puts patients at a daily risk of their internal organs and arteries spontaneously rupturing. Working closely with the EDS […]
25 January, 2022
Introducing our first 2022 Community Champion Award Winner – Jeannie Di Bon!
Jeannie Di Bon is a movement therapist specialising in hypermobility, Ehlers-Danlos syndrome and chronic pain. With over a decade of experience in supporting clients with their pain management and guidance on the path to health and wellbeing, Jeannie regularly educates and trains other therapists and shares information on supporting people with EDS and HSD. Jeannie […]
2 December, 2021
Belfast Zoo become the first to receive our Community Champion Award
Belfast Zoo was built on Cave Hill in the early 70s (and further down the Cave Hill, the old original zoo was established in 1934) so it is a beautiful site but they face challenges in making the zoo an accessible place for all. This hasn’t stopped them doing all they can to make the […]