SearchResearch news
4 March, 2025
Exciting new research into exercise and vEDS announced.
We are delighted to announce that Annabelle’s Challenge and The Ehlers-Danlos Support UK are jointly funding a new research programme together with Sheffield Hallam University for the benefit of adults living with vascular Ehlers Danlos syndrome (vEDS). For the purposes of the programme, researchers will work alongside people with vEDS, carers and healthcare professionals to […]
22 February, 2023
Charity funding leads to 10 year study of rare EDS types
Research funded by EDS UK and Annabelle’s Challenge in 2019 has led to a new 10 year study of rare types of Ehlers-Danlos syndromes (EDS). The Natural history Exploration of rare EDS types (the NEEDS study) will be led by Dr Fleur van Dijk in collaboration with Dr Neeti Ghali from the National EDS Diagnostic Service […]
24 November, 2022
New EDS and HSD primary care study in Northumberland
A GP in Northumberland is leading research in the area looking at how many people have an Ehlers-Danlos syndrome (EDS) or a hypermobility spectrum disorder (HSD) and how this impacts their use of the healthcare system. Lead researcher Dr Ben Frankel, who has a personal interest in EDS, is leading a team looking at how […]
17 December, 2020
Summary of Scottish youth consultation
In 2019, The Ehlers-Danlos Support UK commissioned a consultation with young people in Scotland with EDS and HSD. We wanted to find out about their experiences and needs in order to guide a dedicated support programme for young people. This important piece of work was made possible by a fantastic group of fundraisers in Scotland, led by […]
7 May, 2019
EDS UK and Annabelle’s Challenge fund largest vascular EDS research database
The Ehlers-Danlos Support UK is delighted to announce that we and Annabelle’s Challenge are jointly funding the creation of one of the largest vascular Ehlers-Danlos syndrome (vEDS) research databases in the world. The funding has been awarded to the EDS National Diagnostic Service at Northwick Park Hospital and is an important step towards undertaking future research […]