Conferences and events

10 February, 2021

Five new webinars for members in February and March

We are delighted to announce two new webinars which are free to attend for members. You must preregister for the webinars and you can do so with the links below:   Buteyko breathing method with Jane Simpson: Saturday 20th February @ 11am Jane Simpson has been an asthmatic since birth and has hypermobility.  It was the […]

19 March, 2020

Postponement of 2020 vascular EDS conference

We are sorry to announce that we have taken the difficult decision to postpone the vascular EDS conference. We were so looking forward to welcoming you in May, however, following advice from the government and our medical advisors, this is the right thing to do in these uncertain times. If you have booked tickets for […]

31 May, 2019

Mast cell activation expert Dr Lawrence Afrin to talk in London in November

The Academy of Nutritional Medicine is hosting mast cell activation syndrome (MCAS) expert Dr Lawrence B. Afrin MD as part of its annual conference in London on Sunday 17th November 2019. The conference is open to anyone, with discounted tickets for patients. The conference, called MAST CELLS, MOULD AND THE MYRIAD OF DIVERSE FACTORS UNDERLYING CHRONIC […]

21 November, 2017

2017 Management and wellbeing conference videos

Please click on the links in the Agenda below to view a presentation: DAY 1: 10.00 Welcome – EDS UK and HMSA 10.05 Overview of new classification of EDS –Dr Hanna KazKaz 10.45 Break 11.15 Managing PoTS – Dr Lesley Kavi, PoTS UK 11.40 Living with mast cell activation disorder – Gawain Paling, Mast Cell […]

30 August, 2017

Management and wellbeing conference 2017

There are still tickets available for the Management and Wellbeing Conference 2017, being held by EDS UK and the HMSA on Saturday September 30th and Sunday October 1st at Chesford Grange Hotel, Warwick. Tickets can be purchased here. The aim of the conference is to provide members with practical health and wellbeing advice to manage […]

1 March, 2017

Vascular EDS Conference, May 2017

We are proud that The Ehlers-Danlos Support UK and Annabelle’s Challenge jointly hosted the first ever UK Vascular EDS Conference on Saturday 6th and Sunday 7th May 2017 in Bury, Greater Manchester. A huge thank-you to the EDS National Diagnostic Services for putting together the medical programme for day 1, chaired by Dr Glenda Sobey.  The latest […]

20 May, 2016

Raising awareness in primary care

EDS UK’s Health and Helpline Advisor, Mya, has been representing the charity at The Primary Care and Public Health Conference in Birmingham this week. Mya has been speaking to medical and allied healthcare professionals at the front line of care to raise awareness about EDS and explain the importance of early diagnosis.

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