Vascular EDS Conference, May 2017

We are proud that The Ehlers-Danlos Support UK and Annabelle’s Challenge jointly hosted the first ever UK Vascular EDS Conference on Saturday 6th and Sunday 7th May 2017 in Bury, Greater Manchester. A huge thank-you to the EDS National Diagnostic Services for putting together the medical programme for day 1, chaired by Dr Glenda Sobey.  The latest information and research on vascular EDS (vEDS) was shared by eminent clinicians and researchers including Dr Diana Johnson, Professor Nigel Wheeldon, Mr Mark Field, Dr Elena Cervi, Mr Duncan Baker, Dr Neeti Ghali and Dr Fleur van Dijk.

Day 2 saw inspiring talks from people who live with vEDS as well as sessions on working positively with professionals in child safeguarding situations, mindfulness and the MedicAlert system.

The event also offered a unique opportunity for patients and families touched by vEDS to meet others with the condition, to share experiences and form lasting friendships. A fantastic children’s and young people’s programme was provided by Theatre Dance Studios, Bolton.

We were able to offer tickets free of charge due to kind grants from the Foyle Foundation, the Big Lottery Fund and funds raised in memory of Louise Webb.

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