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18 May, 2020
My Journey to Diagnosis and Beyond
by Lyndsay McIntyre My HSD first became apparent when I was three. Well apparent to me anyway. At birth, doctors were concerned about my hips, then quickly dismissed this. By age three, I discovered that my thumbs bent back and that some of my other fingers could ‘lock’ (swan neck deformity). There was always talk […]
18 January, 2019
Ambassador Anoushé Husain climbs with EDS in new short film
Ehlers-Danlos Support UK ambassador paraclimber Anoushé Husain talks about climbing being her physiotherapy for her EDS in a new short film released this week. The film, called If I Can, shows Anoushé as she ventures away from the indoor climbing wall and into outdoor climbing. Anoushé talks about how EDS affects her and how she finds release […]