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Did you know...all our support groups are run by Area Coordinators who volunteer their time to organise meetings all over the country. Our Area Coordinators are from all walks of life including some who suffer with EDS, to those who care for someone with it. Without our volunteers, the support we provide to you would cease to exist, so we are incredibly grateful for the invaluable work they do.
We have over 100 groups online and face to face, with the aim to provide safe, friendly environments where members can meet others, listen to people’s stories and learn from each other. All of our support groups also have a closed regional Facebook group for members only.
We are very grateful to all of our funders who help pay for the meetings, training of our volunteers and much more.
North London
Vicki
Vicki is your North London volunteer Area Coordinators.
Hello there, my name is Vicki. I am one of the coordinators for the North London support group, and I’m very much looking forward to working with EDS UK. I was diagnosed with EDS in 2008, before which I spent several years mainly lying down, with little medical support. After diagnosis things got better for me, as I was able to ask the right questions and seek better medical help! I am now a qualified counsellor, and when I’m physically able I love to go for walks, socialise, and play the piano. I understand how difficult it is to access help and support, and how hard it can be to manage a chronic illness.
Members of EDS UK are welcome to join their regional closed members group on Facebook. Visit us here to join your regional group.
Please note that Volunteer Area Coordinators may not get back to you immediately.
If you need to talk right now, whatever you’re going through, there are people you can talk to any time. You can:
call Samaritans on 116 123 (UK-wide)
text SHOUT to 85258 (UK-wide)
call C.A.L.L. on 0800 132 737 (Wales only)
These services are for anyone who’s struggling. They won’t judge you.
They’re free, they’re anonymous, and they’re always open.
There are currently no meetings in the diary for this support group. If you have selected to receive notifications on this support group we will notify you when one is organised. You can update what Support Groups you are notified about in your member profile.