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Did you know...all our support groups are run by Area Coordinators who volunteer their time to organise meetings all over the country. Our Area Coordinators are from all walks of life including some who suffer with EDS, to those who care for someone with it. Without our volunteers, the support we provide to you would cease to exist, so we are incredibly grateful for the invaluable work they do.
We have over 100 groups online and face to face, with the aim to provide safe, friendly environments where members can meet others, listen to people’s stories and learn from each other. All of our support groups also have a closed regional Facebook group for members only.
We are very grateful to all of our funders who help pay for the meetings, training of our volunteers and much more.
Ipswich
Rebecca
Hello! I’m Rebecca, Area Co-ordinator for Ipswich. I’ve lived in the area my whole life – apart from a brief university detour – so it’s truly home.
My hEDS diagnosis came relatively recently (I’ll keep my age a mystery!), spurred on by my concerns about the easy bruising of my two bendy school-aged children and the possible consequences.
Alongside my human family, I’m also pet mum to a geriatric cat – or does that make her my mum now?! – and a rescue dog who’s still learning the ropes – and we’re learning right along with her.
I currently work part-time, which gives me the flexibility to balance rest, recovery, and the lively rhythm of home life. I’m a big fan of arts and crafts and always up for trying something new.
Baking is another passion of mine, and when the occasion calls for it, I love pulling out all the stops with cake decorating.
Members of EDS UK are welcome to join their regional closed members group on Facebook. Visit us here to join your regional group
Please note that Volunteer Area Coordinators may not get back to you immediately.
If you need to talk right now, whatever you’re going through, there are people you can talk to any time. You can:
call Samaritans on 116 123 (UK-wide)
text SHOUT to 85258 (UK-wide)
call C.A.L.L. on 0800 132 737 (Wales only)
These services are for anyone who’s struggling. They won’t judge you.
They’re free, they’re anonymous, and they’re always open.
There are currently no meetings in the diary for this support group. If you have selected to receive notifications on this support group we will notify you when one is organised. You can update what Support Groups you are notified about in your member profile.