SearchSupport Groups
Did you know...all our support groups are run by Area Coordinators who volunteer their time to organise meetings all over the country. Our Area Coordinators are from all walks of life including some who suffer with EDS, to those who care for someone with it. Without our volunteers, the support we provide to you would cease to exist, so we are incredibly grateful for the invaluable work they do.
We have over 100 groups online and face to face, with the aim to provide safe, friendly environments where members can meet others, listen to people’s stories and learn from each other. All of our support groups also have a closed regional Facebook group for members only.
We are very grateful to all of our funders who help pay for the meetings, training of our volunteers and much more.
Swindon
Annie
Hi
I’m Annie, and am delighted to be your Area Coordinator for Swindon.
I was diagnosed with hEDS 12 years ago at 52.
Lightbulb moment was an understatement!
My working career and my own personal medical history has given me a good understanding and insight of NHS and it’s specialities
My 40 year career includes Nursing, Pharmaceutical Sales , Pharmaceutical Training Manager, Medical Recruitment, CRUK Fundraising Manager, and finally I ended my working life as a consultant with Clinique .
Sadly store closure during lockdown forced an early retirement !
I am sure that a place like Swindon has a lot of fellow Zebras and I would love to see a local group form and grow, to support, befriend, share and encourage each other
Looking forward to speaking/ meeting up with you
Members of EDS UK are welcome to join their regional closed members group on Facebook. Visit us here to join your regional group.
Please note that Volunteer Area Coordinators may not get back to you immediately.
If you need to talk right now, whatever you’re going through, there are people you can talk to any time. You can:
call Samaritans on 116 123 (UK-wide)
text SHOUT to 85258 (UK-wide)
call C.A.L.L. on 0800 132 737 (Wales only)
These services are for anyone who’s struggling. They won’t judge you.
They’re free, they’re anonymous, and they’re always open.
Date: 3rd September 2026
Start: 2:00 pm
Finish: 4:00 pm
Venue: The Arts Centre, Devizes Road, Old Town, Swindon, SN1 4BJ
Additional info: F2F Support Group Meeting with Annie. Refreshments provided and accessible toilets. Everyone welcome
Map:
Date: 1st October 2026
Start: 2:00 pm
Finish: 4:00 pm
Venue: The Arts Centre, Devizes Road, Old Town, Swindon, SN1 4BJ
Additional info: F2F Support Group Meeting with Annie. Refreshments provided and accessible toilets. Everyone welcome
Map:
Date: 5th November 2026
Start: 2:00 pm
Finish: 4:00 pm
Venue: The Arts Centre, Devizes Road, Old Town, Swindon, SN1 4BJ
Additional info: F2F Support Group Meeting with Annie. Refreshments provided and accessible toilets. Everyone welcome
Map: