SearchSupport Groups
Did you know...all our support groups are run by Area Coordinators who volunteer their time to organise meetings all over the country. Our Area Coordinators are from all walks of life including some who suffer with EDS, to those who care for someone with it. Without our volunteers, the support we provide to you would cease to exist, so we are incredibly grateful for the invaluable work they do.
We have over 100 groups online and face to face, with the aim to provide safe, friendly environments where members can meet others, listen to people’s stories and learn from each other. All of our support groups also have a closed regional Facebook group for members only.
We are very grateful to all of our funders who help pay for the meetings, training of our volunteers and much more.
UK (for all members)
All the meetings and webinars listed below can be attended by all EDS UK members, regardless of their location. If you have any queries about these meetings, please email info@ehlers-danlos.org
Online meeting
Date: 5th September 2026
Start: 7:00 pm
Finish: 8:30 pm
Zoom meeting link: Click here to join
Additional info: Please ensure you read our online support group meeting policy and privacy policy before attending. The online support group policy is particularly important as it sets out guidelines for how the meeting will take place and things you should consider before attending an online support group.
Support group with for neurodivergent members. With Graham. All welcome
Online meeting
Date: 21st November 2026
Start: 7:00 pm
Finish: 8:30 pm
Zoom meeting link: Click here to join
Additional info: Please ensure you read our online support group meeting policy and privacy policy before attending. The online support group policy is particularly important as it sets out guidelines for how the meeting will take place and things you should consider before attending an online support group.
Support group with for neurodivergent members. With Graham. All welcome