SearchSupport Groups
Did you know...all our support groups are run by Area Coordinators who volunteer their time to organise meetings all over the country. Our Area Coordinators are from all walks of life including some who suffer with EDS, to those who care for someone with it. Without our volunteers, the support we provide to you would cease to exist, so we are incredibly grateful for the invaluable work they do.
We have over 100 groups online and face to face, with the aim to provide safe, friendly environments where members can meet others, listen to people’s stories and learn from each other. All of our support groups also have a closed regional Facebook group for members only.
We are very grateful to all of our funders who help pay for the meetings, training of our volunteers and much more.
Stratford Upon Avon
Beckey
Hi, I’m Beckey, and I am the area co-ordinator for South Warwickshire (based in Stratford- upon-Avon). I have had a ‘shopping list’ of health problems all my life, including heart surgery at age 3, and full spinal surgery at age 11 for a severe kyphoscoliosis. I have been to every consultant I can think of for all sorts of issues, and eventually I was diagnosed with Fibromyalgia in 2013.
About 3 years into my diagnosis, I knew there was still a piece of the picture missing and eventually discovered that EDS fit me perfectly. I have had this confirmed by a few different specialists. My GP has been really supportive, and I am currently waiting for a referral for genetics testing to investigate whether it is Kyphoscoliotic EDS. I am happily married to my best friend, Paul and we have two wonderful teenagers. Our 17 year old daughter has had very similar health struggles as me and has recently received her diagnosis of hEDS.
My professional background is in Youth and Community work. Although I am no longer able to manage paid employment, I actively contribute to my local community through various volunteer activities. I can often be found whizzing about town in my Robooter (electric wheelchair). I have been running a Fibromyalgia support group for over 7 years and am pleased to be able to facilitate a space where fellow Zebras can come together for mutual support.
Please note that Volunteer Area Coordinators may not get back to you immediately.
If you need to talk right now, whatever you’re going through, there are people you can talk to any time. You can:
call Samaritans on 116 123 (UK-wide)
text SHOUT to 85258 (UK-wide)
call C.A.L.L. on 0800 132 737 (Wales only)
These services are for anyone who’s struggling. They won’t judge you.
They’re free, they’re anonymous, and they’re always open.
Online meeting
Date: 10th September 2026
Start: 3:00 pm
Finish: 4:30 pm
Zoom meeting link: Click here to join
Additional info: Please ensure you read our online support group meeting policy and privacy policy before attending. The online support group policy is particularly important as it sets out guidelines for how the meeting will take place and things you should consider before attending an online support group.
Virtual support meeting with Beckey. Everyone is welcome
Date: 8th October 2026
Start: 3:00 pm
Finish: 5:00 pm
Venue: Hotel Chocolat Cafe, Unit J2, The Maybird Centre, Birmingham Road, Stratford-Upon-Avon CV37 0HZ
Additional info: Support meeting with Beckey. Everyone is welcome - please feel free to bring a friend or family member with you - parking available onsite and there are accessible facilities. Refreshments provided.
Map:
Online meeting
Date: 12th November 2026
Start: 3:00 pm
Finish: 4:30 pm
Zoom meeting link: Click here to join
Additional info: Please ensure you read our online support group meeting policy and privacy policy before attending. The online support group policy is particularly important as it sets out guidelines for how the meeting will take place and things you should consider before attending an online support group.
Virtual support meeting with Beckey. Everyone is welcome
Date: 10th December 2026
Start: 3:00 pm
Finish: 5:00 pm
Venue: Hotel Chocolat Cafe, Unit J2, The Maybird Centre, Birmingham Road, Stratford-Upon-Avon CV37 0HZ
Additional info: Support meeting with Beckey. Everyone is welcome - please feel free to bring a friend or family member with you - parking available onsite and there are accessible facilities. Refreshments provided.
Map: