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Did you know...all our support groups are run by Area Coordinators who volunteer their time to organise meetings all over the country. Our Area Coordinators are from all walks of life including some who suffer with EDS, to those who care for someone with it. Without our volunteers, the support we provide to you would cease to exist, so we are incredibly grateful for the invaluable work they do.
We have over 100 groups online and face to face, with the aim to provide safe, friendly environments where members can meet others, listen to people’s stories and learn from each other. All of our support groups also have a closed regional Facebook group for members only.
We are very grateful to all of our funders who help pay for the meetings, training of our volunteers and much more.
Bangor
Emma
I am Emma. I live in Bangor, North Wales. I am diagnosed with Hypermobile Ehlers Danlos Syndrome with marfanoid phenotype along with many of the extra issues/co-morbidities that can
come with that.
I really want to help and make a difference to people in this community. I know how hard it is from personal experience to be listened to or diagnosed with the condition, especially from the point of
view as a teenager/young women.
I study speech and language/linguistics at Bangor University and have a passion for research in this area and its association with Ehlers Danlos. I also volunteer at my local hospital in Bangor, Ysbyty Gwynedd, and advocate for the condition in the area as much as possible.
Please note that Volunteer Area Coordinators may not get back to you immediately.
If you need to talk right now, whatever you’re going through, there are people you can talk to any time. You can:
call Samaritans on 116 123 (UK-wide)
text SHOUT to 85258 (UK-wide)
call C.A.L.L. on 0800 132 737 (Wales only)
These services are for anyone who’s struggling. They won’t judge you.
They’re free, they’re anonymous, and they’re always open.
There are currently no meetings in the diary for this support group. If you have selected to receive notifications on this support group we will notify you when one is organised. You can update what Support Groups you are notified about in your member profile.