SearchSupport Groups
Did you know...all our support groups are run by Area Coordinators who volunteer their time to organise meetings all over the country. Our Area Coordinators are from all walks of life including some who suffer with EDS, to those who care for someone with it. Without our volunteers, the support we provide to you would cease to exist, so we are incredibly grateful for the invaluable work they do.
We have over 100 groups online and face to face, with the aim to provide safe, friendly environments where members can meet others, listen to people’s stories and learn from each other. All of our support groups also have a closed regional Facebook group for members only.
We are very grateful to all of our funders who help pay for the meetings, training of our volunteers and much more.
Hastings
Lynda
I’m Lynda and excited to be your Area Coordinator for Hastings
I was diagnosed with hEDS at 49 years old, when finally I got answers to the challenges with my health and that it was real and not all in my head.
My own personal medical history has given me a good understanding and insight of NHS and it’s specialities and challenges faced by those with EDS and other related conditions.
Although my career has mostly been in the IT sector, I have been a carer for several family members for many years gaining a practical knowledge of the workings of our healthcare systems.
Being a Zebra and finding my herd has been very special to me and really looking forward to growing this herd in this position.
Members of EDS UK are welcome to join their regional closed members group on Facebook. Visit us here to join your regional group.
Please note that Volunteer Area Coordinators may not get back to you immediately.
If you need to talk right now, whatever you’re going through, there are people you can talk to any time. You can:
call Samaritans on 116 123 (UK-wide)
text SHOUT to 85258 (UK-wide)
call C.A.L.L. on 0800 132 737 (Wales only)
These services are for anyone who’s struggling. They won’t judge you.
They’re free, they’re anonymous, and they’re always open.
Date: 25th August 2026
Start: 6:30 pm
Finish: 8:00 pm
Venue: Conquerors March, Stonestile Ln, Hastings TN34 2RA
Additional info: In-person support group meeting with Lynda. Fully accessible venue, free car park, disabled toilets and free refreshments available. All welcome!
Map:
Date: 5th September 2026
Start: 10:00 am
Finish: 12:00 pm
Venue: The Welcome Church, 1-5 Church St W, Woking GU21 6DJ
Additional info: TMJ and Hypermobility Anna van Piggelen, Osteopath and Orofacial Myofunctional Therapist Join us for a thoughtful and practical conversation about TMJ, jaw pain and hypermobility. Anna has over 15 years of experience in osteopathy, with a specialist interest in head, neck and jaw pain, and particular experience supporting people with EDS and hypermobility. What to expect: TMJ issues and their relationship with hypermobility Understanding jaw pain, tension and dysfunction Anna’s clinical experience and insights Your questions, experiences and reflections
Map:
Date: 29th September 2026
Start: 6:30 pm
Finish: 8:00 pm
Venue: Conquerors March, Stonestile Ln, Hastings TN34 2RA
Additional info: In-person support group meeting with Lynda. Fully accessible venue, free car park, disabled toilets and free refreshments available. All welcome!
Map: