SearchSupport Groups
Did you know...all our support groups are run by Area Coordinators who volunteer their time to organise meetings all over the country. Our Area Coordinators are from all walks of life including some who suffer with EDS, to those who care for someone with it. Without our volunteers, the support we provide to you would cease to exist, so we are incredibly grateful for the invaluable work they do.
We have over 100 groups online and face to face, with the aim to provide safe, friendly environments where members can meet others, listen to people’s stories and learn from each other. All of our support groups also have a closed regional Facebook group for members only.
We are very grateful to all of our funders who help pay for the meetings, training of our volunteers and much more.
Chelmsford
Charlotte
I’m Charlotte, and I’m excited to be your local Area Coordinator for Chelmsford.
After a random fall and an A&E visit, I found myself on the path towards an hEDS diagnosis. After a lifetime of unexplained symptoms and searching for answers, I was finally diagnosed in September 2025 — giving me a name for what I had been experiencing for so long.
I’m a Primary School teacher, and I’m passionate about creating supportive communities where people feel understood, connected, and less alone. Having experienced the challenges of navigating diagnosis and living with hEDS, I’m looking forward to bringing people together locally, sharing experiences, and helping to build a welcoming space for the EDS and HSD community in Chelmsford.
Members of EDS UK are welcome to join their regional closed members group on Facebook. Visit us here to join your regional group. Please email nikki@ehlers-danlos.org if you are interested in volunteering.
Please note that Volunteer Area Coordinators may not get back to you immediately.
If you need to talk right now, whatever you’re going through, there are people you can talk to any time. You can:
call Samaritans on 116 123 (UK-wide)
text SHOUT to 85258 (UK-wide)
call C.A.L.L. on 0800 132 737 (Wales only)
These services are for anyone who’s struggling. They won’t judge you.
They’re free, they’re anonymous, and they’re always open.
Date: 10th October 2026
Start: 12:15 pm
Finish: 1:45 pm
Venue: DI room, The Community Station, Moulsham Lodge Community Trust (MLCT) 99 Gloucester Avenue, The Community Station, Chelmsford, Essex, CM2 9DS
Additional info: Chelmsford support group meeting with Charlotte - all welcome
Map: