SearchData protection policy
Our data protection policy can be downloaded by clicking here..
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Complaints policy
Effective: 1 March 2025 The Ehlers-Danlos Support UK (EDS UK) aims to maintain high standards in all of its work but we recognise that we don’t always get it exactly right, despite our best intentions. We are committed to establishing and maintaining good relations with all volunteers, supporters, donors, partners, and members of the public […]
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Delivery and returns
1. Where do you deliver to? We are currently only able to deliver shop orders to the UK and Republic of Ireland. Any orders placed for delivery outside these areas will be refunded. Please email us if you wish to arrange international delivery (info@ehlers-danlos.org). 2. What are your delivery charges? All our items are […]
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Fundraising policy and ethical framework
The Ehlers-Danlos Support UK (EDS UK) fundraises to deliver on its mission to offer support to anybody touched by any of the Ehlers-Danlos syndromes. We have signed up to the Fundraising Regulator’s Code of Fundraising Practice and all our fundraising will be open, honest, fair and legal. This document sets out our policy on ethical […]
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Membership policy
1.0 Membership schemes and benefits The Ehlers-Danlos Support UK (EDS UK) has two membership schemes available to anybody aged 18 or over touched by EDS (free membership and plus Fragile Links). The benefits of each scheme are outlined on the membership section of the website. EDS UK reserves the right to amend or cancel any […]
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Online support groups policy
This policy will be updated shortly.
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Privacy Policy
1.0 What is this Privacy Policy for? This privacy policy is for the domain ehlers-danlos.org and served by The Ehlers-Danlos Support UK and governs the privacy of its users who choose to use it. The policy sets out the different areas where user privacy is concerned and outlines the obligations and requirements of the users, […]
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Social media marketing
Targeting our digital and social media marketing On occasion, we will use the information you provide us to target our digital and social media advertising effectively. This could include securely providing contact details such as your name and email address to digital advertising networks or social media companies such as Facebook, Google and Twitter. For […]
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Terms and conditions
These terms and conditions apply to the use of this Website and by accessing this Website and/or placing an order you agree to be bound by these terms and conditions, our delivery and returns policy, membership policy and our privacy policy. If you do not agree to be bound by these terms and conditions you […]
-
Complaints policy
Effective: 1 March 2025 The Ehlers-Danlos Support UK (EDS UK) aims to maintain high standards in all of its work but we recognise that we don’t always get it exactly right, despite our best intentions. We are committed to establishing and maintaining good relations with all volunteers, supporters, donors, partners, and members of the public […]
-
Delivery and returns
1. Where do you deliver to? We are currently only able to deliver shop orders to the UK and Republic of Ireland. Any orders placed for delivery outside these areas will be refunded. Please email us if you wish to arrange international delivery (info@ehlers-danlos.org). 2. What are your delivery charges? All our items are […]
-
Fundraising policy and ethical framework
The Ehlers-Danlos Support UK (EDS UK) fundraises to deliver on its mission to offer support to anybody touched by any of the Ehlers-Danlos syndromes. We have signed up to the Fundraising Regulator’s Code of Fundraising Practice and all our fundraising will be open, honest, fair and legal. This document sets out our policy on ethical […]
-
Membership policy
1.0 Membership schemes and benefits The Ehlers-Danlos Support UK (EDS UK) has two membership schemes available to anybody aged 18 or over touched by EDS (free membership and plus Fragile Links). The benefits of each scheme are outlined on the membership section of the website. EDS UK reserves the right to amend or cancel any […]
-
Online support groups policy
This policy will be updated shortly.
-
Privacy Policy
1.0 What is this Privacy Policy for? This privacy policy is for the domain ehlers-danlos.org and served by The Ehlers-Danlos Support UK and governs the privacy of its users who choose to use it. The policy sets out the different areas where user privacy is concerned and outlines the obligations and requirements of the users, […]
-
Social media marketing
Targeting our digital and social media marketing On occasion, we will use the information you provide us to target our digital and social media advertising effectively. This could include securely providing contact details such as your name and email address to digital advertising networks or social media companies such as Facebook, Google and Twitter. For […]
-
Terms and conditions
These terms and conditions apply to the use of this Website and by accessing this Website and/or placing an order you agree to be bound by these terms and conditions, our delivery and returns policy, membership policy and our privacy policy. If you do not agree to be bound by these terms and conditions you […]